7 years

7 years

Seven years ago today I shared these words on my blog: MONDAY, MAY 21, 2007 Diagnosis Day We got “the call” tonight. Brooklyn’s blood tests were back and she has been officially diagnosed with Rett Syndrome. We have assumed this to be true for a few weeks now but it was still hard to hear […]

Happy Mother's Day

Happy Mother’s Day

It is funny…I am not sure when it happened really. The moment that my mom became one of my best friends. Don’t get me wrong – I don’t ever remember not liking my mom – even during my bratty challenging junior high years :) She has always been there for me. I remember her chaperoning many […]

Integrated Listening

Integrated Listening

Boston does not like wearing headphones…..in fact he pretty much hates headphones which is an issue when the plan is to start incorporating Integrated Listening into his ABA program.  So the plan is to start training him to wear them.  How exactly? The Wiggles of course! The Wiggles go on the ipad the same time the […]

Love & Awareness for DS/ADS

Love & Awareness for DS/ADS

Anyone that knows me, knows my DEEP connection to the Girl Power 2 Cure organization – Rett Syndrome has been in my life for almost seven years now and the GP2C flower logo has become my symbol of hope, belief, and all things Rett Syndrome. However, my second little love also has a diagnosis  (two […]

HOW did Brooklyn "ROCK" her quizzes???

HOW did Brooklyn “ROCK” her quizzes???

Yesterday I shared this picture of Brooklyn after school on facebook, saying she ROCKED two quizzes.  I had a couple comments and emails asking about how she took them so I thought I would do a blog post to help explain it a bit more. (Thank you Beth – emailing you encouraged me to share!) […]

Coloring eggs was a bit more fun this year ;)

Coloring eggs was a bit more fun this year ;)

It is that time of year – to get out all of the egg decorating kits. This year we thought it would be a little more fun for Brooklyn to have a few friends over to decorate eggs (I think we were right!) Thank goodness my mom hits the clearance bins each year – we […]

Ragnar 4 Rett

Ragnar 4 Rett

These six women did an amazing thing this weekend. They ran – and when I say ran, I mean they ran 195 miles as part of the Southern California Ragnar Relay They were one of over 700 teams that competed. However, it gets MORE intense – most teams have twelve members on their team – […]

The Start of a New Chapter

The Start of a New Chapter

Today was Boston’s last day of preschool. Why? Because ABA at Hopebridge starts on Monday morning.  I have so many emotions going on right now. I am so sad because Boston LOVES preschool – here are a couple of photos of him on the way to school this morning. LOVES IT. Three more reasons I […]

World Down Syndrome Day

World Down Syndrome Day

First – I am SO sorry for being such a blog slacker. February was filled with the Disney Princess 1/2 Marathon for Girl Power 2 Cure  and then our family vacation to Disney World (which were both AWESOME and WILL be blogged soon I promise) and then Brooklyn ended up in the NICU with double […]

It is ok to sit the bench sometimes.

It is ok to sit the bench sometimes.

This is NOT one of those encouraging posts about being ok with your typical child not being a superstar on the football field or basketball court. It IS an encouraging post about YOU – the special needs parent – the Cheerleader. Your child’s biggest fan and the supporter of all other special needs families. I […]