Coloring eggs was a bit more fun this year ;)

Coloring eggs was a bit more fun this year ;)

It is that time of year – to get out all of the egg decorating kits. This year we thought it would be a little more fun for Brooklyn to have a few friends over to decorate eggs (I think we were right!) Thank goodness my mom hits the clearance bins each year – we […]

Ragnar 4 Rett

Ragnar 4 Rett

These six women did an amazing thing this weekend. They ran – and when I say ran, I mean they ran 195 miles as part of the Southern California Ragnar Relay They were one of over 700 teams that competed. However, it gets MORE intense – most teams have twelve members on their team – […]

The Start of a New Chapter

The Start of a New Chapter

Today was Boston’s last day of preschool. Why? Because ABA at Hopebridge starts on Monday morning.  I have so many emotions going on right now. I am so sad because Boston LOVES preschool – here are a couple of photos of him on the way to school this morning. LOVES IT. Three more reasons I […]

World Down Syndrome Day

World Down Syndrome Day

First – I am SO sorry for being such a blog slacker. February was filled with the Disney Princess 1/2 Marathon for Girl Power 2 Cure  and then our family vacation to Disney World (which were both AWESOME and WILL be blogged soon I promise) and then Brooklyn ended up in the NICU with double […]

It is ok to sit the bench sometimes.

It is ok to sit the bench sometimes.

This is NOT one of those encouraging posts about being ok with your typical child not being a superstar on the football field or basketball court. It IS an encouraging post about YOU – the special needs parent – the Cheerleader. Your child’s biggest fan and the supporter of all other special needs families. I […]

"Footprints" in the snow

“Footprints” in the snow

At this time in the year many of us are sick and tired of snow days – even the kids! I think because the realization has set in that everyone will be going to school till JUNE – YUCK, who needs that?!?! Plus, being cooped up inside it just getting old…I say bring on SPRING! […]

Team GP2C  - 2014 Disney Princess 1/2 Marathon

Team GP2C – 2014 Disney Princess 1/2 Marathon

This is me two years ago – getting my bib number and psyching myself up to take part in my first ever 1/2 marathon as part of Team GP2C. I thought I was INSANE because well…I hate running. But lets face it, I hate Rett Syndrome more so challenge accepted! Now  two years later and […]

Lives are changed because of Universities…..especially THIS Univeristy.

I remember when we received our diagnosis of Rett Syndrome for Brooklyn. I was devastated to say the least. I had so many fears. How long would she live? What kind of life would she have? Will she miss out on everything all the little girls her age get to do? Will she get to […]

Confession of a special needs mom: "I am a bad friend."

Confession of a special needs mom: “I am a bad friend.”

As a special needs mom I have read quite a few articles like this and even shared a few but this by far is my favorite so far. Please read the article before continuing on with this blog post:) I want to take a moment to thank my “typical” friends that have not given up […]