The daily "line up"

The daily “line up”

The above photos are all examples of  “line ups” that are currently going on in my house this afternoon. I assume most of my Autism mom friends recognize this. I am not sure WHY he does it really. I only know that he does…..all of the time. Mostly with DVDs and blocks but as you can […]

Post Op

Post Op

One week ago today we came home from having surgery at Shriners Hospital in Chicago. I apologize for not being all that great on updating everyone on how this week as been but this picture sort of sums it up. Poor thing. I should back up and fill you in on what led us to […]

Rough Week

Rough Week

It has been a rough couple of days. Wednesday morning Brooklyn was in her recliner – hooked up to her feeding pump having breakfast just like every other morning. I was in the kitchen getting Boston’s food packed up for ABA. Then I heard a thud. (which is not unusual – Boston gets rowdy in […]

Boston's Blended Diet

Boston’s Blended Diet

It has been awhile since I shared any of my blends. I mixed up a few today so I thought I would post. Keep in mind Boston is gluten and dairy free so if your kiddo is not you can substitute some dairy options as well. I use my Blendtec blender to make them. The […]

Team Brooklyn - Disney Princess 1/2 Marathon

Team Brooklyn – Disney Princess 1/2 Marathon

I am taking 2015 off from running the Disney Princess 1/2 Marathon. I will be there to CHEER on all of the runners and will be helping out with all of the GP2C events and hanging out with my Rett Syndrome family – just no running this year. Of course that does not mean that […]

Farewell 2014....

Farewell 2014….

I will start this post with an apology…..what a blog slacker…..I thought it might be a good idea to do an end of the year post to touch on some of the highlights (and not so “high”lights of the year. <this is a LONG post – you have been warned!> January – We began the […]

Merry Christmas!

Merry Christmas!

Thank you SO MUCH to all of you who sent cards to us this year!! I love opening each and every one of them. I love seeing your kids (and or pets) grow. I love seeing all of my friends changing over the years – seeing the love in their families. I apologize for not […]



Last month was Awareness month and when I think about Down Syndrome and Rett Syndrome facts, awareness, and acceptance I could go on and on with stats, stories, symptoms, etc. OR I can post one picture. Denise shared this picture with me yesterday saying it was one of her favorites from the photo shoot. It […]

Rockin' for Rett

Rockin’ for Rett

This year’s Rockin For Rett was AMAZING!!! I still can’t believe that this was our SIXTH year. Where has the time gone? I am still SO thankful that Libby came to me wanting to host an event, wanting to do SOMETHING to help. Over the past six years this event has raised over $40,000. This […]