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Rockin' For Rett

Rockin’ For Rett

I can’t believe that this is our SIXTH year for Rockin’ For Rett! We are so pumped – each year gets bigger and better! I cant thank Joe & Libby and the entire Piggy’s crew enough. Mike Conley is joining us again this year – he of course is always a crowd favorite! The Brent […]

ABA

ABA

Today I spent the morning down at Hopebridge Pediatric Specialists where Boston receives his ABA Therapy along with Speech and OT. I have mixed emotions about ABA. I have seen some amazing changes in him – but at the same time I just hate the idea of him being there altogether. I want to drop […]

Communicating with my girl

Communicating with my girl

First off I want to give a huge thank you to Ingrid who helped me with this great presentation FOUR years ago! Over the years I have had people ask me to share it with them and realized I have never written a blog about it!  I thought I might share it with you here – it […]

Zoo Day!

Zoo Day!

We had a pretty yucky day yesterday at the orthopedic surgeon [Brooklyn will be having surgery over Christmas break to remove the hardware that they used during her hip reconstruction surgery two years ago - due to her growth it has to come out or it will do damage to surrounding bones. She has healed […]

It is almost back to school time!

It is almost back to school time!

It is ALMOST back to school time. Around here that not only means getting Brooklyn ready to return to school but it also means helping her peers get to know and understand her too! Brooklyn will be in the fourth grade this year so most of her classmates have probably been in class with her […]

Depending on others is NO fun

Depending on others is NO fun

Yep. I have been a blog slacker. Today though something has been going through my mind so much that I felt the need to blog about it….. Some of you may know that I had to have abdominal surgery. It all went well, and everything is fine….I am just finishing up “recovery time” which my surgeon […]

7 years

7 years

Seven years ago today I shared these words on my blog: MONDAY, MAY 21, 2007 Diagnosis Day We got “the call” tonight. Brooklyn’s blood tests were back and she has been officially diagnosed with Rett Syndrome. We have assumed this to be true for a few weeks now but it was still hard to hear […]

Happy Mother's Day

Happy Mother’s Day

It is funny…I am not sure when it happened really. The moment that my mom became one of my best friends. Don’t get me wrong – I don’t ever remember not liking my mom – even during my bratty challenging junior high years :) She has always been there for me. I remember her chaperoning many […]

Integrated Listening

Integrated Listening

Boston does not like wearing headphones…..in fact he pretty much hates headphones which is an issue when the plan is to start incorporating Integrated Listening into his ABA program.  So the plan is to start training him to wear them.  How exactly? The Wiggles of course! The Wiggles go on the ipad the same time the […]