Prom and an attempt at normalcy

Prom and an attempt at normalcy

I am having a little bit of a freak out that my daughter is turning ten in a month. Double digits. I am not ready for that. Mainly because her birthday also means the anniversary of her Rett Syndrome diagnosis is just around the corner. I can get stuck in that “ugh, this sucks, why […]

Ragnar 4 Rett

Ragnar 4 Rett

This weekend six AMAZING women will we running 182 miles for 182 girls with Rett Syndrome in the ‪#‎SoCalRagnar‬ ‪relay race. They run because our girls can’t and because our hope is that one day they WILL! Brooklyn is mile 177  and her runner is Kristen,  we will be cheering her on from here and hope […]

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Autism Awareness Month

Autism Awareness Month

We are six days into Autism Awareness Month and I have not blogged. (I know – you are not shocked – I have been quite the blog slacker the past few months) Anyway, this is a tough one. I feel like I just “celebrated” World Down Syndrome Day – oh…because we did…just last month! Now…here […]

World Down Syndrome Day

World Down Syndrome Day

Yesterday was World Down Syndrome Day! Why March 21st? (3.21) Because of the three copies of the 21st chromosome which is unique to individuals with Down Syndrome. I am blessed to have a couple amazing friends that are way more tech savvy and they helped me with the images below (thanks again James and Duncan!) […]

Making Choices

Making Choices

Making choices….we all LOVE to make our own decisions…even at five years old. Now, don’t get me wrong, at five a child can’t be expected to always make good choices – nor do we let them make big, life choices. But how about choosing what dvd they are in the mood to watch or if […]

The daily "line up"

The daily “line up”

The above photos are all examples of  “line ups” that are currently going on in my house this afternoon. I assume most of my Autism mom friends recognize this. I am not sure WHY he does it really. I only know that he does…..all of the time. Mostly with DVDs and blocks but as you can […]

Post Op

Post Op

One week ago today we came home from having surgery at Shriners Hospital in Chicago. I apologize for not being all that great on updating everyone on how this week as been but this picture sort of sums it up. Poor thing. I should back up and fill you in on what led us to […]

Rough Week

Rough Week

It has been a rough couple of days. Wednesday morning Brooklyn was in her recliner – hooked up to her feeding pump having breakfast just like every other morning. I was in the kitchen getting Boston’s food packed up for ABA. Then I heard a thud. (which is not unusual – Boston gets rowdy in […]

Boston's Blended Diet

Boston’s Blended Diet

It has been awhile since I shared any of my blends. I mixed up a few today so I thought I would post. Keep in mind Boston is gluten and dairy free so if your kiddo is not you can substitute some dairy options as well. I use my Blendtec blender to make them. The […]