World Down Syndrome Day

World Down Syndrome Day

Yesterday was World Down Syndrome Day! Why March 21st? (3.21) Because of the three copies of the 21st chromosome which is unique to individuals with Down Syndrome. I am blessed to have a couple amazing friends that are way more tech savvy and they helped me with the images below (thanks again James and Duncan!) […]

Making Choices

Making Choices

Making choices….we all LOVE to make our own decisions…even at five years old. Now, don’t get me wrong, at five a child can’t be expected to always make good choices – nor do we let them make big, life choices. But how about choosing what dvd they are in the mood to watch or if […]

The daily "line up"

The daily “line up”

The above photos are all examples of  “line ups” that are currently going on in my house this afternoon. I assume most of my Autism mom friends recognize this. I am not sure WHY he does it really. I only know that he does…..all of the time. Mostly with DVDs and blocks but as you can […]

Post Op

Post Op

One week ago today we came home from having surgery at Shriners Hospital in Chicago. I apologize for not being all that great on updating everyone on how this week as been but this picture sort of sums it up. Poor thing. I should back up and fill you in on what led us to […]

Rough Week

Rough Week

It has been a rough couple of days. Wednesday morning Brooklyn was in her recliner – hooked up to her feeding pump having breakfast just like every other morning. I was in the kitchen getting Boston’s food packed up for ABA. Then I heard a thud. (which is not unusual – Boston gets rowdy in […]

Boston's Blended Diet

Boston’s Blended Diet

It has been awhile since I shared any of my blends. I mixed up a few today so I thought I would post. Keep in mind Boston is gluten and dairy free so if your kiddo is not you can substitute some dairy options as well. I use my Blendtec blender to make them. The […]

Team Brooklyn - Disney Princess 1/2 Marathon

Team Brooklyn – Disney Princess 1/2 Marathon

I am taking 2015 off from running the Disney Princess 1/2 Marathon. I will be there to CHEER on all of the runners and will be helping out with all of the GP2C events and hanging out with my Rett Syndrome family – just no running this year. Of course that does not mean that […]

Farewell 2014....

Farewell 2014….

I will start this post with an apology…..what a blog slacker…..I thought it might be a good idea to do an end of the year post to touch on some of the highlights (and not so “high”lights of the year. <this is a LONG post – you have been warned!> January – We began the […]

Merry Christmas!

Merry Christmas!

Thank you SO MUCH to all of you who sent cards to us this year!! I love opening each and every one of them. I love seeing your kids (and or pets) grow. I love seeing all of my friends changing over the years – seeing the love in their families. I apologize for not […]

Life.

Life.

Last month was Awareness month and when I think about Down Syndrome and Rett Syndrome facts, awareness, and acceptance I could go on and on with stats, stories, symptoms, etc. OR I can post one picture. Denise shared this picture with me yesterday saying it was one of her favorites from the photo shoot. It […]