UGH….I have no better title for this post!
I thought I would take a few minutes of my lunch to post about my recent frustration. Why do insurance companies have a “rapid response” department? Shouldn’t ALL our claims be handled immediately? Exactly how irate do I have to get with the person on the other end of the phone before they think it [...]
Thanks Grammy!!!
Grammy got me this SUPER CUTE pink and white polka dot bean bag chair. I love it! As you can see from this picture, I am so sweet that I continue to get eaten alive by mosquito’s even though mom practically keeps me indoors 24/7. Oh well……
Back in the Gait Trainer….
I swear she had taken 3 or 4 steps during our developmental therapy session before I got my camera! I decided to post this anyway. Mainly because I am SO proud that she tries SO hard in therapy (and all day long really.) Plus, she is so cute…
Rett Syndrome Strollathon
I know there are some family and friends that are too far away and are unable to join us for the Rett Syndrome Strollathon in Cincinnati on September 22nd. Many of you have asked how you can donate and support TEAM BUTLER for this event. Simply click the logo or click here. You will be [...]
To Janet’s House We Go….
I love my trip to Janet’s house every morning, mommy’s singing makes me laugh. Today Jackson greeted me with a big “Hi Bwook!” and mommy got a hug and a kiss from him. That is a GREAT start to the day!
Cleveland Browns? NO….Indians!
I got these cute Cleveland Indian P.J.’s from my aunt for my birthday. They are really comfy!
Happy Birthday Josh!!
I got to hang out with Josh last night and share his ice cream cake! It was so much fun….I love Josh! I hope you had a GREAT birthday!!!!
Sleeping Beauty
So peaceful…no clapping, irregular breathing, tremors, nothing. What a blessing for her.
Seizure Update
I had someone ask me about Brooklyn’s seizures today. I realize it has been awhile since I updated everyone about them. We are currently at 2 cc’s of Keppra twice daily and she is doing GREAT! No seizures in quite awhile! YEAH!! Also, she is doing FABULOUS on the Miralax. I was given a bottle [...]
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