More Wiggly Fun!
I know you ALL remember my excitement of meeting the Wiggles back in August; with me being sick I have not mentioned that daddy and mommy are taking me to another Wiggles concert THIS Sunday. No, I do not get to meet them again but I am totally psyched to see them live again!! Stay [...]
Trick or Treat
As you can see I am feeling MUCH better. I am still not feeling up to going out with my cousin Jackson and Jordan tonight ~ they are going to Tri-State University to get candy and play games with the college kids at mommy’s work. I did get to put on my super cute “kitty” [...]
Thoughts on today
I have quite a few things I want to say about the event today.First and most importantly I met some AMAZING moms (and girls) today. I am still new to our “life with Rett.” There were moms there that have been living this life for 23 even 33 years! Today was harder on me than [...]
A quick hello
Geez mom….I am not feeling well enough for one of your “photo shoots.” I do want to tell everyone that I am starting to feel a little better. I am still running a fever so I will not be able to attend the Rett family regional outing today which makes me sad! But mommy is [...]
Thanks for helping support Rett Syndrome Awareness Month Aunt Kristin!
My Aunt Kristin made this flyer to hand out to all the teachers in her school building!! OCTOBER IS RETT SYNDROME AWARENESS MONTH!!! This is a picture of my Aunt Kristin and me. She said that she teaches with you at Carlin Park Elementary School! I want you to know that I appreciate all of [...]
Last night in the ER
I first want to say that Brooklyn is home with daddy this morning and doing fine. Last night was no fun.We ended up in the ER at 2:30am with Brooklyn. She has had a fever for 4 days now, again still no new symptoms – just a fever. She had a “breath holding” session which [...]
Millions of lives will be touched
There was an article published about a very generous gift to Texas Children’s Hospital. Mr & Mrs Duncan donated 50 MILLION to Neurological Research. They were inspired to make the donation based on the lack of research in this area. What a blessing to all of our lives that are affected personally with Rett Syndrome. [...]
Good News/Bad news
Well, I have good news and bad news. I usually want to always hear the bad news first so….Brooklyn is home sick again. Her fever is 103. We were up with her at midnight and again at 4am. So far the fever is her only symptom. But that does mean canceling developmental therapy for the [...]
A relaxing fall afternoon at the Butler’s
It was a BEAUTIFUL fall day here in Angola today, a perfect day for a walk! and a quick nap in the swingMommy put me in the hammock with her What a relaxing day!
Come on Cleveland!!
Seriously…..don’t let this little tribe fan down!!!(I know this picture is a couple months old but I had to pull it back out!)
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