Geez
I am home sick again.Double ear infections – really bad ones AND a sinus infection causing an irritated throat. I had to come home from Janet’s house early today to go see Dr. Dean. He gave me some medicine but I am under “house arrest” again for the next three days….awwww man!
Therapy Hammock
Brooklyn LOVES her new therapy hammock, it is just like the one her physical therapist uses with her but now she has her very own! Thank you Scott (aka, my big bald buddy!) You ROCK!! Sorry that the video is so dark, I hope you can still see that she LOVES it!
New Equipment
This is Brooklyn’s new Rifton Stander which we are borrowing from Children First Center. It is nice to be able to try it out before ordering a $2,500 piece of equipment! Although the newer ones that we are looking at are a little smaller in overall size. This stander allows her to stand without support [...]
Music Class
Mommy and I are all signed up for our “Music Together” class. Our first class is January 8th and I can’t wait. Aunt Kristin and Jackson are going to be in our class too. Molly Stock took me as a guest to her class earlier this year and I had so much fun that mommy [...]
Raising Rett Syndrome awareness locally: Brooklyn was on the front page of last Sunday’s paper
ANGOLA, IN — Two-and-a-half-year-old Brooklyn Butler has big, beautiful eyes and a wide, perfect smile. But, those expressive eyes and non-verbal clues from the turn of her mouth or claps of her hands are the only way she can communicate. Brooklyn, the daughter of Charlie and Kelly Butler of Angola, has Rett Syndrome. A genetic [...]
Nana
My Nana came up from Cincinnati to visit me for Thanksgiving. It was so good to see her. She said that I have gotten so big!We read together and of course watched some Wiggles ~ Nana is trying really hard to learn the songs! She also helped mommy find a special apple juice that is [...]
Way to go Toys R Us!!!
I want to commend Toys R Us this holiday season. They have a “Differently-Abled” Toy catalog. It gives family members ideas for gifts based on skills the children are working on. You can search by gifts for boys/girls, age, price, brand or category (this is where they break it down by skill ie. a, gross [...]
It is ALMOST December…
That means it is time for my mommy and aunt Kristin to get us together to attempt the “perfect” Christmas card photo! Mommy forgot my tights at home, oops! This one, not so perfect…. ummm, mommy; I fell under the tree… Are we DONE yet????I know you are ALL really excited to see the final [...]
Another Thanksgiving
Another Thanksgiving has come and gone.I know many of you read this blog faithfully and probably don’t get the feeling that I have been very thankful over this past year. I have shared lots of emotions here but thankfulness….maybe not so much. I am thankful though; for many things! Thankful to have a diagnosis for [...]
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