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I feel like I do not even know where to start with this post……2007 was quite a year here in the Butler household. A year of confusion, fear, and frustration which eventually led us to a diagnosis of Rett Syndrome that took us through anger, sadness, and finally hope. I have felt emotions I did [...]
RETT SYNDROME RESEARCH PROJECT NAMED ONE OF THE TOP TEN SCIENTIFIC BREAKTHROUGHS OF 2007!On December 27th WIRED released their Top 10 Scientific Breakthroughs of 2007 and honored the work of Adrian Bird, Ph.D. with their selection as the 5th most important scientific breakthrough of the year. Bird’s landmark study which documented the reversal of Rett [...]
My sweet little girl started back up with her Occupational Therapy today. We got a new therapist that I think Brooklyn is going to love. We had a pretty good session today, I look forward to working with her!
Thank you for my “new” Chair Aunt Kristin and Josh! I LOVE IT! Brooklyn has a VERY hard time not slipping out of most seats. As you can see in the picture Brooklyn’s rocking chair has been transformed! This rocking chair was actually mine when I was a little girl which makes it even more [...]
Brooklyn had a very good Christmas! She was not able to open her gifts this year but did allow mommy to help her with each one. As you can see from the photos, there were quite a few Wiggles gifts which obviously put a huge smile on her face! We spent the day over at [...]
I got to hang out with my cousin Bradley while I was in Cincinnati. His mommy and my daddy are cousins. He hung out with me and even watched the Wiggles with me!
Today is Brooklyn’s last day at Janet’s house. It has been our routine since Brooklyn was 9 weeks old……It will feel SO WEIRD not to take her on Monday. I want to thank Janet for her love and support to Brooklyn (and to me!!) She has been through the laughter and the tears over the [...]
God is Good! I was sitting here at work when Majic 95 CALLED ME!!! My name was submitted and chosen for one of their Christmas Wishes. We received a 2008 season pass to the Fort Wayne Zoo AND they are buying us the Maclaren Special Needs Stroller! This is SO amazing! I was speechless…..well actually [...]