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An SUPER easy way to support Rett Research!

Do you search the Internet occasionally? OK……daily?If so, you can help raise money for Rett Syndrome research! Simply go to http://www.goodsearch.com/ In the middle of the page you will see this:WHO DO YOU GOODSEARCH FOR? This is where you type in “Rett Syndrome Research Foundation” and click the verify button. Now…search the Internet using this […]

Socks for AFO

For all Rett moms: These are the socks that Brooklyn uses with her orthodic’s (She wears the Jumpstart orthodics set from Cascade); they work great! They are a bit pricey but as we all eventually find out….you get what you pay for. We LOVE them. They are seamless so they don’t bug her and they […]

Rett Update

The Keppra that they have prescribed for her seizures seems to be helping a bit but she is SO sleepy that it has been hard to tell how effective it is really. Sometimes I feel that she is so tired that I can’t tell if she is having a seizure for sure. I have talked […]