I know….another video!!
I know; three videos in two days….a record for me! I am just so proud of how hard Brooklyn has been working over the past couple of months and she is doing so much these days I just HAVE to share it will all of you! This is Brooklyn walking with Nan, her physical therapist.
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In case I have not mentioned it….my mom ROCKS!! I wanted to post this video to show everyone how well Brooklyn is doing with her switches and her choices. Her “vocabulary” is growing so much! It is so encouraging and exciting to see all the new things she is learning.Thanks mom, I do not tell [...]
Where is the purple one??
You will all be impressed to know that Brooklyn knows all the “basic” colors!!! If we are not using the switch, she will look at the object/color we are asking her for.
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My day started out with Grammy bringing my my FAVORITE breakfast from McDonald’s…a McGriddle!! Thanks Grammy, you are the BEST! You sure know how to make me smile!
IRSF launches new site!!
For those of you that have been reading our blog for awhile; you might remember me talking about the merger of 2 great Rett Syndrome Organizations. Both organizations were VERY helpful for me the first couple of months as I was “accepting” the diagnosis (and still are!)I can only imagine how amazing they will be [...]
Communication is the key
Believe it or not Brooklyn will be starting preschool this fall. I am a little stressed out about that for SO many reasons but also very excited for her. One goal of mine is to help her find a stronger method to communicate.The YES/NO cards have helped us tremendously and her eye gaze is amazing. [...]
Rough Day
Well…..We ordered her wheelchair today.Why is that so hard on me? It is not like we are doing ANYTHING different. Our goal is still to get her to walk. We HAVE to have a wheelchair for preschool. They require all non-ambulatory kids to have one for school. That is the ONLY reason we ordered one.Why [...]
My new seat cushions
My chair cushions came today! They are purple, aren’t they cute!!?? Thanks Nana for getting them for me! Here is a picture of me trying them out! Yep….I like them!!
These hiccups are hilarious!
Brooklyn was cracking herself up with her hiccups this afternoon. Although she also thought her cousin Jackson was pretty funny with his balloon too!



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