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I love hanging out with Aunt Kristin and Jackson

Published by Kelly on February 29, 2008 | 2 Responses

Aunt Kristin and Jackson hung out after dinner tonight, we had SO MUCH fun! I could not stop giggling!

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Physical Therapy

Published by Kelly on February 29, 2008 | 4 Responses

I know you all love to follow Brooklyn’s progress with her walking. Here is video of her walking with Nan during PT today.

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Balancing

Published by Kelly on February 29, 2008 | 5 Responses

Brooklyn’s PT has been doing some work on balancing, she was quite impressed with little miss Brooklyn today!

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Alex and Me

Published by Kelly on February 27, 2008 | Leave a response

Alex came to visit me tonight!OK, he came to see mom and dad too but mostly me! He was in from Cincinnati ~ I love when he visits! Alex, mommy and daddy laughed so much tonight……I think they were glad he came! You need to visit more often Alex!

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Word Verification

Published by Kelly on February 26, 2008 | 2 Responses

I apologize to my regular readers for the new extra step you have to go through to leave a comment but I have added the “word verification” to my comment section due to spam that I am receiving via the comment section. Sorry! I do hope you will still take the time to comment, you [...]

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I just love my little girl SO much!!!

Published by Kelly on February 25, 2008 | 5 Responses
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Girl Power…..Raising money for a cure!

Published by Kelly on February 21, 2008 | Leave a response

We just started “Team Brooklyn” for a cool new fund raiser! It’s called “Dress Up 2 Cure” and money raised will go to Rett Syndrome Research. A fellow “Rett Mom” runs the Girl Power 2 Cure web site and she is in charge of thisAMAZING event! You can join or support TEAM BROOKLYN online! Click [...]

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Rett Syndrome "Family" Map

Published by Kelly on February 21, 2008 | Leave a response

I am trying out a project for my Rett Syndrome “extended family.” It is a map of Rett Syndrome families. I posted this on RETTNET but realize I have friends that are not a part of RETTNET. If you are interested in adding your daughters (or sons) please do! I figure it is a good [...]

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Take ten minutes and read about Carly

Published by Kelly on February 20, 2008 | 1 Response

I have said it here before…….communication is the key for Brooklyn!This link was posted on RETTNET and tells the story of a gal with Autism and how she communicates with her computer. It is truly a touching story and proves to me even more the importance of giving our girls a voice! I hope you [...]

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More work in the Stander

Published by Kelly on February 20, 2008 | 2 Responses

We are still waiting to hear about our options of a new stander. We continue to work with the one we have on loan. I did finally figure out that is was not “too” hard to take the huge tray off. I have no idea if I will be able to get it back on, [...]

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