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Yesterday after Brooklyn’s Preschool party we headed up to Jackson, Michigan to meet with Dr. Ted. He was great (and sounded just like Grandpa George!) He won Brooklyn over right away by putting a Wiggles DVD on for her! Guess what……..Dr.Ted sees four other Rett girls. That was an unexpected (and very welcome) surprise. The [...]
Mommy and Daddy came to preschool for my Spring Party, I was SO excited to see them. My whole face smiled! This is my preschool teacher Miss Gilley. She is so great! We have so much fun at school, I sure am going to miss her this summer!
Carrie and Avery are coming to visit!!! Most of you that read this blog probably click over to see Avery’s blog too because let’s face it SHE IS ADORABLE! We are all so excited here in the Butler house! Carrie was not able to make it to the Rett Syndrome Conference so I am so [...]
Tuesday night I was reading books with Brooklyn and Charlie was fixing her milk. He was talking about how he puts FOUR scoops of the strawberry Nestle Quick in her milk. I said, “honey that is too much – she will not like it. I only put ONE scoop in. Brooklyn will think it is [...]
I really missed my evening walks with Charlie and Brooklyn while I was in Chicago. She has been sticking her leg out straight like this during our walks, mostly when she is barefoot(I think to feel the wind on her foot) but last night she was doing even though her socks were on Part of [...]
I came across a link from the conference that I wanted to be sure to post.Susan Norwell was to me one of the most inspiring/encouraging presenters at the conference. I think maybe because communication is so hard for our girls and I want SO BADLY to communicate with Brooklyn. Susan reminded us to “teach to [...]
My first Rett Syndrome conference…..My mind is still sorting through all of the information that it took in over the weekend. The conference was great! Meeting other moms was so good for me; it was what my heart needed. There are so many times that I feel alone in “all of this.” I honestly do [...]
Mitch and Erin at the Tribute Dinner (notice Riley’s picture on the name tag – all of us had these great buttons of our daughter on our name tags. It was great to see pictures of all the girls!) Erin and me at the Tribute dinner. It was a nice event, it gave us a [...]
I wanted to share a couple pictures of these fabulous women and their girls. Here is Erin with her daughter Riley.This is Kim and her daughter Karlie. Sweet little Riley again Karlie was so amazing and let me love on her all weekend! This little girl is Hannah and I did not get to talk [...]
Today I had lunch with Brooke’s mom, Caitlyn’ mom, and Edda’s mom (otherwise know as Samantha, Rebecca, and Doris.) We are all here in Chicago for the Rett Syndrome Conference. I feel like I have know them forever. These three gals are three of the first moms that I connected with (via the blogging world.) [...]