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Girl Power 2 Cure and ebay: we make a great pair! Girl Power 2 Cure, Inc is joining forces with Ebay Giving Works to offer this amazing new way to raise funds for Rett Syndrome research! We know money is tight these days, so now instead of only asking folks for monetary donation, you can [...]
I want to thank Erin (a friend and fellow rett mom) for the adorable Girl Power 2 Cure scarf and hat she made! We LOVE them! I had asked Erin to try out some directions for making a fleece hat (becasue I am NOT crafty) she made it and it turned out adorable! Here is [...]
Our little town actually has two Rett angels living here. Last night we got together for some pizza. It is always good to see Taylor! Last night she thought Brooklyn was pretty funny :) She is also letting Brooklyn borrow one of her chairs that she used when she was little…..thanks Taylor!
Brooklyn’s Grandpa George and Grandma Margie are hosting a concert in honor of Brooklyn to raise money for Rett Syndrome research! If you happen to live in the Atlanta area be sure to check it out! ANNUAL THANKSGIVING BENEFIT CONCERTSaturday Evening, 15 November, 2008 at 6:00 PMThe William Baker Festival SingersThe Northside Young Singers, Lynn [...]
We were in Chicago yesterday for Brooklyn’s 6 month appointment for the Rett Syndrome Natural History Study. The visit went really well. Brooklyn weighed in at 25 pounds and was 35 inches there. Dr. Motil (her nutritionist) was happy with the way Brooklyn looked and she is “on the charts” at the 5%! She actually [...]
Jackson REALLY wanted to go for a bike ride – he was more than willing to assist Brooklyn with her answer :)
Rett Syndrome Research Trust is looking for 3000 donors for 3000 drugs. RSRT has committed to testing every FDA-approved drug for efficacy in treating symptoms of Rett Syndrome. What is a large-scale drug screen, and why must it be undertaken? Clinical trials are the endpoint of a drug discovery process that takes 12 years and [...]
I decided that it might be a good idea to try on Brooklyn’s Halloween costume to make sure it fits! Plus we were carving pumpkins last night and what a better time to get dressed up like a cute little pumpkin! (Photo Time!!) Cute…right??!!! I love this look she is giving me….”awww mom!” Ok, this [...]
Rett Syndrome Awareness month is always a time for us to educate others as well as to raise money for Rett Syndrome research. Our local deli did just that! They offered our Girl Power 2 Cure flowers for $1 donation in honor of Brooklyn and Taylor (our two local angels) and they raised $100 in [...]