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Brooklyn’s new bath “seat” came in the mail today. I actually opted to not get an actual seat – they all seemed to be up out of the water and Brooklyn seems to like being in the water a lot. This will give us the back support that she needs on the days that she [...]
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I can honestly say I have NEVER had a big smile like this on my face when I was ironing!She was watching my mom iron and looked like she wanted to try it out! Oh what a difference a few hours makes. Her smile and giggles have turned to gagging and tears. Poor thing, She [...]
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I know there have not been any posts for a few days. My apologies, but the Butler House is sick :( Poor Brooklyn has had a high fever, runny nose, cough, the works – we had her in urgent care on Sunday and they said it was an upper respiratory infection (which I also have.) [...]
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I just realized I have not posted about our WBV platform that is on its way! The Whole Body platform has been listed on our “wish list” since around June. I attended a great session at the Rett Syndrome Conference that talked about various therapeutic interventions for our girls and the physical therapist who was [...]
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Thought I would post a couple of pictures of Brooklyn before preschool today (although she was not “entertaining” the camera this morning as much as usual!) I also wanted everyone to see the adorable pink hair bow! Carrie sent her TEN new bows for Christmas this year. My mom said that ALL the girls at [...]
The Life That’s Chosen Me – Karen Taylor-Good
There has recently been a lot of talk among Rett Syndrome moms online about how tough it is when friends and even family start to distance themselves from you after the diagnosis of Rett Syndrome. It breaks my heart to hear a mom tell me that her own parents do not come around to see [...]
Happy Birthday Carrie!!!
I want to wish a very “Happy Birthday” to one of my dearest friends, Carrie! It is funny to think that I did not even know her on her birthday last year. You see her daughter Avery also has Rett Syndrome. We “met” actually when she saw a video of Brooklyn on YouTube while they [...]
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You just have to LOVE this smile! and the dimples :) which lead to giggles…..for all of us! Today Brooklyn was wearing her “HOPE” shirt. Here in the Butler house we are full of hope for 2009. We pray that all of our friends and family (especially all of our “extended”Rett Syndrome family) have an [...]
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I have had a few people ask me about this cute little widget on the side of my blog. I am glad you like it! Ingrid designed it for Girl Power 2 Cure. It is a great way to raise awareness for Rett Syndrome!So, if you have a blog or a web page; I encourage [...]
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GOOD NEWS!We had Brooklyn’s follow up appointment with her ENT and her tubes are both out of her ears and they look perfect….he actually used the word perfect! So…no need to get the tubes put back in! YAY!Brooklyn was a bit upset that school was cancelled because of snow (she LOVES school) but I think [...]
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