Help us find our Cure!!
If you are a regular reader of this blog than you know my daughter Brooklyn has Rett Syndrome. You have watched over the past two years as Brooklyn lost her ability to crawl, walk, talk, and use her hands. You have followed our story and experience our heartache with us. We thank you for all [...]
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I wanted to update you all on Brooklyn and her seizures – or lack of seizures I should say! We have been debating (for a long time now) whether Brooklyn was having seizures or if they were just “Rett Spells.” Our local neurologist was CERTAIN they were seizures because the the eeg reading and she [...]
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Brooklyn has her PINK Cowgirl hat (THANKS DEBBIE!) and was ready for her night out!! Mommy and Brooklyn…..She was ALL smiles! This was the donation bucket for the mechanical bull. Brooklyn on the mechanical bull :) Brooklyn and Pappy The band signed her hat….thanks Shilo!Photo with the band – Shilo ROCKED!!! Some of Brooklyn’s friends [...]
THIS FRIDAY!!!
I just wanted to remind all of our local friends about the Rett Syndrome Fundraiser this Friday at Trine University!!! Hope to see you all there!!! We plan on being there at 5:30 for dinner in the student center, hope you can join us! Help us raise LOTS of money for Team Brooklyn and Girl [...]
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It was SO beautiful here this weekend which meant we could spend sometime outside with Brooklyn. She loves being outside with the sun on her face and the wind blowing through her hair! I hope for MANY more days like these in the very near future!
More bath time cuteness!
Brooklyn is not enjoying her baths as much anymore, that is until Jackson is here joining her for the bath then we get this reaction………I think maybe mommy and daddy are a little bit boring at bath time compared to Jackson! Still smiling after 20 minutes in the tub!!!! She loves her cousin!
Carlin Park Elementary is ready for Dress Up 2 Cure Day…..Are you???
Brooklyn’s Aunt Kristin teaches third grade at Carlin Park Elementary School which is one of the schools participating in Dress Up 2 Cure for Team Brooklyn! Here is a picture of the donation boxes that the students made. Aren’t they GREAT!?!?!?! They made one for each teacher to keep on their desk for April 1st! [...]
Happy Saint Patricks Day!!
Mommy and Brooklyn before preschool today :) Grammy & Brooklyn in their “Irish” outfits All of the kiddos looked great in their GREEN at preschool Brooklyn and her buddy Jessica – aren’t they too cute!?!?!
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Those of you who have been following my blog for awhile remember me writing about Livvy. She is a sweet little nine year old girl with Rett Syndrome that was taken from her family much too soon. I often have people ask me how Sara (her mother) is doing. She posted this lovely poem on [...]
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