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Rett Syndrome Event Promo

I was interviewed on the radio and also for the online video news this morning about Rett Syndrome and our fundraising event this Thursday :) Thanks also to Libby who went on air with me. Libby has been such a HUGE help in organizing this event – with Boston coming early there is no way […]

Thursday Night

There is now another way for you to help us raise money at the event this Thursday!! Get CASH ON THE SPOT FOR YOUR GOLD at Piggy’s Rockin‘ For Rett event on Thursday night. Rachel will be buying your Gold and Silver and paying you cash. She is a local gold buyer in the Angola […]


Boston weighed in at 2 pounds 14 ounces today! He is now taking 3 teaspoons every three hours of my milk through his feeding tube and also pooped on his own today!!They were a little worried about some irregular breathing that was going on but they took a chest x-ray that looked great so no […]

Boston meets his big sister!

We took Brooklyn down to meet Boston for the first time today. She was all smiles! It was such a great feeling to have my entire family all in the same room – even if that room was in the NICU. Boston is doing pretty good. Charlie was able to hold him today for the […]

Brooklyn meets her little brother!

Today we took Brooklyn down to meet her baby brother. I think she decided he was ok ;) even though it was not the little sister she had decided she wanted! I am just SO ready to have him home with us. Of course we have to wait awhile for that to happen. It was […]


Boston started feeds JUST now. He will be getting 1 teaspoon of my milk every three hours through his feeding tube. I pray that his little body does ok with it. This is the first big test of his bowels too! If all goes well this is a HUGE step for our little guy!! Keep […]


This week is the week for Grandpa visits! Pappy came to visit Boston yesterday and took me to lunch…..thanks dad!

Kid Walk

Here is a very short video of Brooklyn in her KidWalk. She is pretty impressed with herself…even if she is going backwards ;)

Tests Came back!

Sleeping soundly as he recovers from surgery. A picture of my tough guy’s incision. Good News – all of Boston’s tests are back and are all perfect! YAY! That is such a huge blessing for us! Basically, he is just a little guy that came into this world a little too soon so not everything […]

Grandpa George

Grandpa George traveled up from Atlanta to meet Boston yesterday! I think he was happy to get to meet the little guy in person instead of just seeing pictures online :) Thanks for making the trip! It was great to see you, even if it was just for the afternoon!