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Boston Clark Butler Has Arrived!

Boston arrived via c-section at 1:38 today weighing 2 lbs 3 oz. He was taken straight to the NICU and will more than likely be there the next 9 weeks. Good news is he is breathing on his own! Please continue to keep him in your prayers! Hopefully Brooklyn will get the chance to meet […]


Brooklyn came to visit me last night…..she was slightly dissapointed that this “TV” would not play Dora OR the Wiggles! However, Aunt Kristin saved the day with figuring out the DVD in my room :) WIGGLES!!!! I had actually gone a full 24 hours WITHOUT hearing or seeing the Wiggles until last night ;) I […] – check it out!!

Girl Power 2 Cure has launched an amazing new site that I want to share with all of my Rett Syndrome families. It is called and like the logo says… is “The Everything Rett Site.” You can check out all sorts of Rett Syndrome products, doctors, fundraisers, recipes, websites and more! The best part […]