This will give you an idea of Boston’s size with my hand laying on top of him.
I am an ordinary mom with two extraordinary kiddos. My daughter Brooklyn is 11 and has Rett Syndrome and is the first special love of my life. My son Boston is 7 and has Down Syndrome and Autism - he also happened to enter this world 10 weeks early, weighing only 2.3 lbs! I often here the words "You have your hands FULL!" I like to remind people that "you should see my heart!" This blog is a little look into my life as a special mommy (x2) I hope you enjoy your time here!
Sites I LOVE
- About Special Kids
- Army of Us
- Baby Be Blessed
- Down Syndrome Footprint
- Down Syndrome of Northern Indiana
- Girl Power 2 Cure
- International Down Syndrome Coalition
- Linda Burkhart – RS Communication
- More With Music
- Rett Girl
- Rett Syndrome Research Trust
- Something Special Magazine
- Teaching Learners with Mulitple Needs
- Kelly on Love & Awareness for DS/ADS
- Elisa Farmer on Love & Awareness for DS/ADS
- How to tell a family their daughter has a Rett Syndrome diagnosis: A message to all doctors and genetic counselors - Army Of Us Blog on Not your typical Down Syndrome “birth day”
- Tommie on Waiting….
- Birthday Boy on Boston Clark Butler Has Arrived!
I love the pics — making me teary eyed! It must be soooo hard not to be able to get to him!!!! HUGS!!!!
love to see you guys! In our prayers!
Oh wow Kel. So tiny. I am so glad he's here. Can't wait till you get to hold him. Keep us updated!!!
Thanks for updating Kelly! I've been thinking and praying for you guys all day! Boston is adorable! Hugs!
What a cutie! Congrats!
Kelly I am so proud of you and your family….Hang in there in no time Boston is going to go home :)
Congratulations again to the Butler clan and the new BIG sister Brooklyn!! We are glad all is well and everyone is healthy and safe!
Prayers and love,
Adam and Lindsay (Capman) Walter
I can' wait for you to get to hold your tiny miracle!!! I think that is one of the hardest things about the NICU. So glad he is safe and our prayers go out to all of you!
He is so precious! I wish we could get a better look at his cute little face :) I'm very pleased to hear you both are doing fine. We will keep you all in our prayers.
Thanks for sharing the pictures.
Congratulations from Noble County! We love his middle name :) and I am sure that YOUR Gram would be so very proud of you.
From, Robin Clark and family
The Stocks are thinking of you . . . glad you are both doing well! Keep the updates coming!
Congratulations on the birth of tiny Boston! We're praying that he will continue to gain strength and get out of that NICU as fast as possible and that you and Charlie will have endurance and the needed faith through it all.
Precious!! You all are in my thoughts and prayers!! Love and Hugs!!
And another thing: thank you for taking time to post the pictures. It's frustrating to have 680 miles between us. Will plan to "drop by" when the shedule here relents a little bit