I was interviewed on the radio and also for the online video news this morning about Rett Syndrome and our fundraising event this Thursday :) Thanks also to Libby who went on air with me. Libby has been such a HUGE help in organizing this event – with Boston coming early there is no way I could have pulled this off without her!We hope to see EVERYONE Thursday night at Piggy’s! Ladies Night starts at 6:00pm! Fellas – be sure to join us at 9:00. It is going to be FUN!!!
I am an ordinary mom with two extraordinary kiddos. My daughter Brooklyn is 11 and has Rett Syndrome and is the first special love of my life. My son Boston is 7 and has Down Syndrome and Autism - he also happened to enter this world 10 weeks early, weighing only 2.3 lbs! I often here the words "You have your hands FULL!" I like to remind people that "you should see my heart!" This blog is a little look into my life as a special mommy (x2) I hope you enjoy your time here!