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Rettgirl.org – check it out!!

Girl Power 2 Cure has launched an amazing new site that I want to share with all of my Rett Syndrome families. It is called rettgirl.org and like the logo says…..it is “The Everything Rett Site.” You can check out all sorts of Rett Syndrome products, doctors, fundraisers, recipes, websites and more! The best part […]

Looks like Baby Butler is coming earlier that we thought

I had my 30 week appointment yesterday and ended up in the hospital. My OBGYN and also a prenatal – neonatal specialist did not like the look of the untra sound, mainly the blood flow through the umblical cord and he is measuring 3 weeks small which of course is cause for concern. Had a […]

Hip Brace

This is it…..Brooklyn’s new hip brace that she is to wear at night. Here we are waiting for the doctor to come in and get her fitted. Trying the brace on for the first time….They had her sit up with it on too, to check the fit. Ummm…..not too crazy about this thing really. She […]

Brooklyn’s hip brace is in

We head back to Jackson, MI tomorrow to pick up Brooklyn’s brace for her hips. I hope it fits ok – the doctor said that since she is such a tiny girl that if the small one he ordered does not fit, we will have to cast her for one and I really do not […]

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Please visit www.rockinforrett.org/brooklyn for more information about the event! Most of you following this blog know that Brooklyn was diagnosed with Rett Syndrome at the age of 2, turning our lives upside down. Daily she struggles to move on her own, but she shows us that it is possible to move mountains. She cannot speak, […]

Kidwalk

I took Brooklyn into school today to meet with her PT, Miss Renee. The stander that Brooklyn used at school last year was not so great. Miss Renee saw a demo of the Kid Walk and LOVED it. She ordered one for Brooklyn’s classroom and it was delivered today! It is both a stander and […]

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I want to thank ALL of the girls from Girls Night last night – they had a “diaper shower” for me…..How awesome to be stocked up with all these diapers and wipes! Plus, look at the sweet frame that Amy got for Brooklyn’s room. It says “Brand New Big Sister.” I can wait to get […]

One Heart Beat At A Time

I wanted to share this with all my mommy friends today. I recently got the amazing opportunity to hear him sing this live to his wife at the Women of Faith Conference….WOW! I know that there are many of my friends reading this blog that feel like maybe you are not making a difference day […]

"My Trip to the Zoo" Book

While we were in Indianapolis this weekend we made it to the zoo. We had a great time and the weather was perfect! Brooklyn likes her “Brooklyn Book” so much that I thought I would make our zoo pictures into a book for her too.We recorded the book on her step by step communicator so […]