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Boston had is follow up eye exam today – which went great! No signs of Retinopathy. Since his eyes had to be dilated, he kept them closed most of the time we were there. He looked good today though and Charlie and I both were able to hold him which of course makes us happy. [...]
I had so much fun going to school with Brooklyn on Friday for her Halloween party! She wore her chef’s hat and apron! Grammy helped her make spooky pudding – mommy liked it better than Brookie did!
We got Brooklyn’s Preschool pictures back – not exactly a smile but still….what a cutie!!
The Butler boys….both sound asleep. I love these guys so much!! Bummer to see all the wires back on him! The wrap on his arm is for the IV – he is getting his nutrients this way for the next 10 days. Boston hit FOUR POUNDS today and his heart echo came back looking pretty [...]
Thank you Miss MiMi for bringing Brooklyn’s Dynavox to school yesterday! We are SO excited to get working with it. She has put so much work into it, loading things of for Brooklyn. Now mommy just needs to “get with it” and learn how to work it!We are starting her on it with the two [...]
I am SO glad to see my sweet little boy today…..man I missed him! It is hard to see him with more tubes than when I left him on Friday though. His surgeon just came in and although at this time no surgery is needed (thank God!) he has decided no feeds for 14 days [...]
I know that I have mentioned this song before but the video is now out and I want the WORLD to see it and hear these amazing words. It is like he has reached into Charlie’s and my heart and soul and spoke our words for us.She’s With MeCollin Raye | MySpace Video
Last night we got a call from Boston’s NICU doctor. Unfortunately we have some more bad news and are again in need of prayer. Boston has developed NEC (Necrotizing Enterocolitis)They are treating him with antibiotics as well as stopping his feeding and putting him back on TPN for his nutrition. They have inserted a larger [...]
Thanks to some AMAZING friends of mine, Boston’s room is DONE! Kristin, Heidi, Erin, Amy L, Sara, & Amy G……YOU LADIES ROCK!!!
This is not an easy post for us to share (Charlie is writing this one……I can’t do it)We have been struggling daily to make sense of why our lives seem to be filled with such hardship. Our hopes were high and still are as Boston starts his seventh week in the NICU. So many of [...]