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We want to thank the Trine University Cheerleading squad! They received the Sportsmanship Award during the National Competition in Florida. This award came with a charitable donation that the squad could donate to the organization of their choice. They said they immediately thought of Boston and wanted to make a donation in his honor. $500 [...]
Well HELLO there!oops – don’t show this picture to our PT – braces aren’t on ;) He LOVES to play peek a boo with anyone sitting in the recliner! I think he wants to take my camera and hide it so I will quit bothering him! Sorry kid, you’re just too cute! yep, back in [...]
Yesterday I had a friend tell me how lucky Boston was – no, not because he has Down Syndrome but because from the beginning I have viewed every teeny tiny milestone as a HUGE success (and greeted them each with a standing ovation!) When you experience Rett Syndrome first, well, Down Syndrome seems “easy.” Now [...]
I am SO excited to share the Rett Syndrome PSA that Girl Power 2 Cure created!! Please share this with others – help us educate the world about Rett!
Boston worked very hard on pull to stand and cruising during PT today will Miss Callie. Sorry that is is not wearing pants – she likes to check out his ankles, knees, & legs during therapy! “whew, mom this is tough!” He was back at it after a little break! He even started on some [...]
I recently was made aware that there is actually a Communication Bill of Rights. As a mother of a disabled (non-verbal) daughter you would think I would have know about something like this. (Better late than never I guess!) Anyway, as I began reading through the list I said to myself, “Everyone wants these things, [...]
“Hey Mom, whatcha doing?” Boston has just started to get himself into the “Bear Crawl” position!! He cracks me up…he will watch the tv like this! Go Buddy! He has taken two “steps” in this Bear Crawl position – he is getting stronger everyday!!!
Poor little guy – can’t keep his 12 months pants up. I wonder how long it will be until we catch up? Oh well, couldn’t resist this pic! He is crawling ALL over the place these days! YAY!!! AND of course is very into blowing raspberries!