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I apologize to those of you who follow both of my blogs but I feel like this post needed shared BOTH places! A fellow “Rett Mommy” (thanks Erica!) posted this link on facebook and I was so moved by it that I want to share it with all of you who read this blog: http://adiaryofamom.wordpress.com/2009/05/01/welcome-to-the-club/You [...]
A fellow “Rett Mommy” posted this link on facebook and I was so moved by it that I want to share it with all of you who read this blog: http://adiaryofamom.wordpress.com/2009/05/01/welcome-to-the-club/You see…….over the past three years I have joined quite a few “clubs” The Rett Syndrome Club, The Preemie Club, The Down Syndrome Club, & [...]
I know there are so many of you who have been thinking of us and praying for us this week. We thank you! Yesterday was for sure the LONGEST of the days. We went to Lutheran Hospital to have the Bravo PH Probe placed. In case you are too worried, here is the BIG smile [...]
My poor girl is EXHAUSTED! It has been a LONG week! We met with Dr. Gohill last week for our consult and the decision was made that a feeding tube is needed for Brooklyn and should be placed this summer. It is weird how I can type that statement so calmly now…… a feeding tube [...]
This weekend Boston made the trip to the zoo with us – you can check out some pics over at Brooklyns blog:http://brooklynbutler.blogspot.com/2011/06/day-at-zoo.html Although, he spent most of his time SLEEPING! (I should have known he was getting sick!) He did wake up in time for the train ride though :)
On Saturday we had the opportunity to meet up with the Mast Family. They are an amazing family from Michigan. Their daughter Mikayla has Rett Syndrome just like Brooklyn. It is always SO great to meet other little girls with Rett an of course spend time with other moms who totally “get” me!Nicole, Mikayla, Me, [...]
I can’t believe kindergarten is over already?! Where did that year go? Yesterday Miss Weber had an awards program for her class. It was so nice! She gave out “candy bar” awards. Each child received a candy bar based on personal experiences throughout the year. Brooklyn got a Snickers bar because of her amazing giggle. [...]
Hmmmmm…..what is so funny? Popping my brother in the nose :) Actually, she did not really ht him but this picture makes me laugh because it sure looks like she is going to. I guess a little bit of Boston love goes a long way in her book!
I had to post this picture on BOTH blogs, it was just too cute not to! Brooklyn was 2 1/2 in her picture wearing this shirt and I took Boston’s picture today in it, he is 20 months. SO stinkin cute!