Horseback Riding
Every Monday night Brooklyn gets to ride horses…..usually “Uno.” We had to take a few weeks off after her feeding tube surgery but have been back riding the past two weeks. I finally remembered to snap a few pictures…..look at this smiling face. I know she is not looking at the camera but this picture [...]
Some pictures from school
This year we are sending a digital camera back and forth from school each day – it helps us document her day – allowing us to “talk” about her school day each evening. What do you think……This is Brooklyn after we finished an “about me” project for first grade….you think she likes school ???!!! :) [...]
A great Rockin For Rett Silent Auction Item!!
We are starting to receive some GREAT silent auction items for our 3rd Annual Rockin’ For Rett event which is set for Saturday October 15th! One amazing company that has joined our efforts is Paper Culture. They are providing us with a $100 gift certificate! If you have not heard of them you MUST check [...]
Update on Boston Bean
I know I mentioned that Boston took FOUR steps – he continues to work hard on his independent walking but he has also made some other “strides” in his development that I though I should mention. “Up” – Boston’s PT says “up” to Boston ALL OF THE TIME. You know…working to get into sitting, sit [...]
First Grade "introduction"
I want to share the letter that I will be sending home with all of Brooklyn’s first grade classmates, some of the students were in her kindergarten class and to be honest MOST of the students in Ryan Park Elementary School know Brooklyn :) But…I wanted all of the parents to also be “introduced” to [...]
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These are not the best quality pictures because my mom took them on her phone but they were way too cute not to share!!! He loves snuggles with his GRAMMY!!
My Tobii
For those of you in the ‘Rett World” you will recognize this piece of equipment RIGHT away….It is a My Tobii! For the rest of my non special needs followers this is an AMAZING….we are talking LIFE CHANGING piece of equipment! It is a computer – only better! It comes the an attachment that allows [...]
Bath Time
“What do you mean its time to get out of the tub!!” – this kid LOVES his bath time!blowing raspberries:) Of course MY favorite time is cuddle time with Boston AFTER his bath!!
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