Surgery Date
Many of you remember me posting THIS picture of Brooklyn’s hip. Well – surgery has been scheduled.We will be over in Chicago on April 3rd for the day doing pre-op, registration, and labs then will go back on April 11th for the actual hip reconstruction and muscle lengthening surgery. I am not sure why actually [...]
Feb. Update
Seriously….just when I think this kid can’t get any cuter!If you are reading this I owe you a huge apology! I have not posted in over a month. I am SOOOOO sorry! Life has been more than a little hectic lately and I just have not taken the time to sit down and write.As far [...]
My reason to run
I have lots and lots of pictures to share of my 1/2 marathon weekend. I am still recovering so that post will have to wait. I do however want to post this one now. Because it is my favorite one. Brooklyn is the reason I participated on Team GP2C for the Disney Princess 1/2 marathon. [...]
A birthday blessing
Do you know how sometime you come across a kid that you know is going to make a difference in this word? You know….a young man that has so much heart, so much compassion, so much awesomeness that it actually makes YOU look at what you are doing and want to do more? Well….Mason is [...]
A little Girl Power
Brookie and I were sporting our Girl Power shirts yesterday. I had the opportunity to hand out flyers at my church to let people know about Rett Syndrome and my upcoming 1/2 marathon. I always LOVE when I have to opportunity to educate others – and if I can raise some funds too….well, that is [...]
Bdubs!!!
JOIN US next Wednesday at Buffalo Wild Wings!! Click on the picture to print out the flyer to take with you on Wednesday!
Professor Adrian Bird
Professor Adrian Bird needs no introduction to anyone who follows Rett Syndrome research. His list of accomplishments includes discovering the MeCP2 protein, developing multiple animal models for the disease and authoring the seminal 2007 Science paper…Prof. Bird was a guest of honor at the Reverse Rett London event and made the following remarks. He touches [...]



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