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April is just around the corner and that means Autism Awareness Month! One of the projects that Girl Power 2 Cure takes on all year long (but focuses on in April) is the Garden of Hope project! Check out the video to learn more. Also, for my local friends, be sure to thank John Sutton [...]
Look at this sweet face….I just LOVE her! I feel like those eyes are saying SO much to me. *sigh* I wanted to let you all know that Brooklyn is feeling MUCH better – all of the lab results came back negative, it looks like it was a virus that needed to run its course [...]
Today is “World Down Syndrome Day!” A day when WORLDWIDE Down Syndrome is being recognized, which of course is an amazing thing! It is great to get the word out about Down Syndrome and the amazingness of all those with that “little something extra.” It is a day focused on peoples strengths, their “can do’s [...]
We are absolutely LOVING this crazy Indiana Spring weather! Even though Brookie is still not feeling quite herself, we were able to get out and enjoy some sunshine this weekend! THANK GOODNESS – a person could go crazy being locked up too long….I think I was well on my way!
It has been a LONG three weeks. Brookie first went to the doctor while I was down in Orlando for the 1/2 marathon…since then we have been back to her peds doc three times, and to her Neuro and GI, endured two rounds of x-rays, blood work, and now are attempting into get stool samples [...]
Harley LOVED the kids SO MUCH! Today was one of the hardest days of my life. My amazing dog Harley had to be put down. She has been battling cancer and it has just become too much for her. I can barely type these words – she has been by my side for almost nine [...]
Each month the amazing folks over at the Three Rivers Running Company choose a “Runner of The Month” to spotlight. I was submitted by a friend of mine (thanks Racheal!) and chosen because of my participation in the Disney Princess 1/2 marathon last month. I do not know how “inspiring” my story really is )although [...]
Just when I think this kids can’t get any more adorable……I take a picture like this. Poor kid STILL isn’t feeling better. We actually ended up in the ER last night. He is ok but the doctor wants him on steroids and breathing treatments for the next five days. We just took a nice warm [...]
I have been blogging since 2007 when we were searching for a diagnosis for Brooklyn and Rett Syndrome entered our world. Then in 2009 when my other little miracle (and Down Syndrome) entered our life I started one for Boston and that, my friends, was over two years ago! Recently I decided to merge them [...]
There are some things in life I hate….filling out ability forms of any kind on my kids is one of those things. I am getting ready for the meeting to transition Boston from his early intervention program into preschool for the fall and with that change comes the Adaptive Behavior Assessment – gag – There [...]