G-Tube Button
Why a picture of this cute little belly and her button? It’s been months since she got her feeding tube! Well…. This one….the one in this picture is the first one I placed ALL BY MYSELF! Brookie did awesome and well…..I did ok too! Tonight was just another one of those “firsts” that as a [...]
WooooHooo
FINALLY….another nice day to get outside! We might just stay out until bedtime :) Grammy got Brookie some purple sunglasses too – we can’t decide which we like the best?
iPhone blogging
I had not been able to blog from my phone since I switched over to WordPress. I want to give my good friend Brian another HUGE thank you! Watch out world….I can blog anytime, anywhere :) which of course means impromptu cuteness like this….
A little love from Ryan Park Elementary
Yesterday Miss Julie (Brooklyn’s Special Ed classroom teacher) stopped in for a visit. Brooklyn was SO happy to see her. I am not sure if it is because she REALLY misses school or if she is just so sick of looking at mommy all the time. :) Heee Heee Hee….. No, I KNOW it is [...]
Mobility Awareness Month (and van voting!)
Don’t forget that May is National Mobility Month! As part of the Celebration The National Mobility Equipment Dealers Association is hosting a Give-A-Way of THREE adaptive mini vans!! Kristin nominated the kids and I for a chance to win. Voting goes through May 13th and the kids and I need to be in the top [...]
Healing
Healing takes time for sure…..time that I wish I could just fast forward right through! Brooklyn has had a very tough week to say the least. Her hip is healing really well. The bandages are off – we are starting to lose some of the steri strips and the part of the surgical site that [...]
Parenting Articles….where do I fit in?
As a special needs mommy I am constantly reading articles online that my friends post. Articles on therapy, research, feeding tips, education/inclusion, and much much more. Yesterday an article came across my facebook page entitled “Parenting a disabled child: when another child isn’t disabled.” It is a really good article and I recommend checking it [...]
OUTSIDE!!!
It has been over a week since Brooklyn has been outside (not counting the car ride home from Chicago after surgery (which in NO WAY counts because it was miserable for the poor girl!) Finally it was a beautiful day here in Northern Indiana yesterday and she was having a good day so we ventured [...]
Disney Princess 1/2 Marathon
Participating in the Disney Princess 1/2 Marathon as part of GP2C was one of the most amazing experiences of my life. A year ago if you would of asked me to do something like this I would have said NO WAY but the encouragement of my sister, other Rett Syndrome Mommies and of course the [...]
Brooklyn’s Surgery
I apologize for the lack of blogging during our stay at Shriner’s Children’s Hospital during Brooklyn’s surgery – there was no wi-fi and I could not blog from my phone. We are home now!! We spent all of our time there in PICU where they could keep a closer eye on her. Brooklyn’s O2 stats [...]
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