I have loved Brooklyn from the moment I found out that I was expecting and my definition of what love really means changed from the moment I held her in my arms. I knew that she was amazing from the start…..my little angel.
Then, Five years ago today our worlds changed again. That was the day that I got the phone call and heard the words that confirmed my fears “Brooklyn has Rett Syndrome…..we are so so sorry.”
Am I sorry Brooklyn has Rett Syndrome?
Would I take it away from her in a heartbeat?
Do I wish treatments or our cure would come soon?
Yes. Yes. and YES.
But am I thankful for the blessing she has been to me and to everyone she meets? Am I thankful that she makes me a better mom, woman, and over all person just by being a part of her amazing little life? Am I inspired, humbled, and so in love with her that it hurts?
Yes. Yes. and YES.
The past five years have for sure changed me and without a doubt have changed Brooklyn – we have been through a lot this little girl and me and we have discovered how tough we are – and the next five years…..well – Rett Syndrome better watch out because we fully intend to beat it!
