Karly passed away in the arms of her family. She has had a tough year and now is free from Rett Syndrome – free to walk, run, dance, and sing with the angels. Of course that does not make it easy on those she left behind….her amazing family. My thoughts and prayers are with them all.
I had the great honor of meeting Karly last year which was awesome! I have been an avid reader of her blog http://spiritdances.wordpress.com/ but to meet her in person was fantastic. Karly was truly an inspiration to me – she was able to type using facilitated communication. She gave me insight into what Rett Syndrome is like. She also encouraged be to always believe in Brooklyn- she helps show so many that our girls are so so smart – just trapped inside their bodies – longing to be just like everyone else.
Karly was a true angel here on earth – like I believe our girls are.
I did not seep much last night….I visited Brooklyn’s room multiple times – sometimes because I heard her coughing, or breathing heavy and sometimes because I did not hear her – and that lack of sound can be even more nerve wrecking. She was fine – to be honest I was not worried about her. It is just that when we lose another gal to Rett Syndrome it takes a toll on me, on my heart, on my soul.
Thank you Karly for your words of inspiration…….
I hear my friends weeping and I only wish to say, please do not weep for me. I am so alive now. I have seen the other side and it’s so much more glorious than you can imagine. I am not eloquent. My brain is tired but my heart is content that my time spent in this world has not been in vain; that my music and words will continue to be used by God to change hearts and lives.
I am sending you so much love.