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How do you do it?

How do you do it?

Lately, (maybe since it is Awareness month and I am talking about Down Syndrome and Rett Syndrome more) I have had quite a few people ask me “How do you do it?”  Which reminded me that back in 2010, I had a friend that was doing a series of blog posts about “How do you […]

Making Choices

Making Choices

Many of you who follow this blog know that Boston is non-verbal. We currently have no real form of communication. We guess, a lot. He yells a lot. We have a couple “basic” things- he knows where his cups are stored and will go near them (and sometimes yell) letting us know he is thirsty.  […]

Brooklyn Age 2 = year of Rett Syndrome diagnosis.

How to tell a family their daughter has Rett Syndrome: A message to all doctors and genetic counselors

It is Down Syndrome Awareness month and I read a brilliant post about “How to Deliver A Down Syndrome Diagnosis the right way” Which, by the way, I encourage everyone to read. However, this got me thinking….maybe a letter also needs to be written on “How to tell a family that their daughter has Rett […]

My Superheroes

My Superheroes

I want to take a moment and honor the two little superheroes in my life….Boston and Brooklyn. These little loves of mine truly fight BIG battles each and every day. Boston as he tackles the duel diagnosis of Down Syndrome and Autism. He fights feeding difficulties, GI issues, sensory processing, cognitive disabilities, fine motor skill […]

Rett Syndrome Awareness Month: Miss Brooke

Rett Syndrome Awareness Month: Miss Brooke

Miss Brooke is Brooklyn’s aide this year in third grade and yesterday she got married. It was such a special day! There were lots of beautiful pictures taken (I can’t wait to see all the love that her photographer captured) but this one above that I took prior to the ceremony is by far one […]

Guest blogger, Gillian Marchenko

Guest blogger, Gillian Marchenko

I am HONORED to have Gillian as a guest blogger today. For those of you who know me, know that I am NOT much of a reader but when I heard whisperings about this book, I knew I HAD to read it – and I am SO glad I did. From the moment I read […]

iPads in the classroom

iPads in the classroom

Of course my first Rett Syndrome post for awareness month is going to be about inclusion – it is no secret that I LOVE it! Today’s focus though is on using an ipad in the classroom. Brooklyn is in the third grade this year, her classroom (along with all the third grades at Ryan Park […]

It is Awareness Month!!

It is Awareness Month!!

October is Rett Syndrome Awareness month. It also happens to be Down Syndrome Awareness month. I plan on blogging quite a bit this month with great information about both in hopes that it not only helps raise awareness and educates but also honors my kiddos. Boston who has Down Syndrome (and Autism) and Brooklyn who […]