Archives by date

You are browsing the site archives by date.

Brooklyn Age 2 = year of Rett Syndrome diagnosis.

How to tell a family their daughter has Rett Syndrome: A message to all doctors and genetic counselors

It is Down Syndrome Awareness month and I read a brilliant post about “How to Deliver A Down Syndrome Diagnosis the right way” Which, by the way, I encourage everyone to read. However, this got me thinking….maybe a letter also needs to be written on “How to tell a family that their daughter has Rett […]