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Rett Syndrome Awareness Month: Miss Brooke

Rett Syndrome Awareness Month: Miss Brooke

Miss Brooke is Brooklyn’s aide this year in third grade and yesterday she got married. It was such a special day! There were lots of beautiful pictures taken (I can’t wait to see all the love that her photographer captured) but this one above that I took prior to the ceremony is by far one […]

Guest blogger, Gillian Marchenko

Guest blogger, Gillian Marchenko

I am HONORED to have Gillian as a guest blogger today. For those of you who know me, know that I am NOT much of a reader but when I heard whisperings about this book, I knew I HAD to read it – and I am SO glad I did. From the moment I read […]

iPads in the classroom

iPads in the classroom

Of course my first Rett Syndrome post for awareness month is going to be about inclusion – it is no secret that I LOVE it! Today’s focus though is on using an ipad in the classroom. Brooklyn is in the third grade this year, her classroom (along with all the third grades at Ryan Park […]

It is Awareness Month!!

It is Awareness Month!!

October is Rett Syndrome Awareness month. It also happens to be Down Syndrome Awareness month. I plan on blogging quite a bit this month with great information about both in hopes that it not only helps raise awareness and educates but also honors my kiddos. Boston who has Down Syndrome (and Autism) and Brooklyn who […]

Blenderized diet

Blenderized diet

Brookie got her feeding tube July of 2011- she was 6. This was something I feared from the very beginning of our Rett Syndrome journey (right, Carrie Akins?!?) Today as I think back, I am not sure why I feared a feeding tube so much, but it terrified me.  Unfortunately, her chewing got worse and […]

Rockin' For Rett!!

Rockin’ For Rett!!

Hey everyone… I wanted to remind you that our FIFTH annual Rockin’ For Rett is coming up at the end of the month on Saturday September 28th. It is at Piggy’s Brew Pub and the fun starts at 6 pm! Admission is just $10 and all the admission proceeds go directly to our cause! There […]

If only I could hear your voices…..

Thanks to my cousin Patricia , I have found a new blogger that I love. Her name is Jo Ashline and from  the small amount of time that I have spent on her blog in the last 24 hours, I think I have found a new friend ;) Some of you might have read her […]

Occupational Therapy - HopeBridge

Occupational Therapy – HopeBridge

Boston had an AMAZING OT session at Hopebridge today. We started the session by walking to the park for some time in the swings. We all know Boston LOVES  to swing!! What you might not know is when he swings – the sensory input he receives is amazing, and he works so much harder the […]

Third Grade

Third Grade

It is back to school time :) Our first “assignment” was to do an “All About Me” page. Brookie and I had a lot of fun filling this out. She absolutely had her opinion on what went on the page. I suggested a few things that were shot down immediately! I love my sweet girl, […]

yep. he gave me a ring :)

yep. he gave me a ring :)

It’s official!!! Jon PROPOSED!! It was absolutely PERFECT. No, I did not have a clue that it was coming, YES I am beyond thrilled. It’s funny, if you would have asked me three years ago if I thought I would be madly in love and happier than I ever expected I would be – I […]