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Farewell 2014....

Farewell 2014….

I will start this post with an apology…..what a blog slacker…..I thought it might be a good idea to do an end of the year post to touch on some of the highlights (and not so “high”lights of the year. <this is a LONG post – you have been warned!> January – We began the […]

Merry Christmas!

Merry Christmas!

Thank you SO MUCH to all of you who sent cards to us this year!! I love opening each and every one of them. I love seeing your kids (and or pets) grow. I love seeing all of my friends changing over the years – seeing the love in their families. I apologize for not […]

Life.

Life.

Last month was Awareness month and when I think about Down Syndrome and Rett Syndrome facts, awareness, and acceptance I could go on and on with stats, stories, symptoms, etc. OR I can post one picture. Denise shared this picture with me yesterday saying it was one of her favorites from the photo shoot. It […]

Rockin' for Rett

Rockin’ for Rett

This year’s Rockin For Rett was AMAZING!!! I still can’t believe that this was our SIXTH year. Where has the time gone? I am still SO thankful that Libby came to me wanting to host an event, wanting to do SOMETHING to help. Over the past six years this event has raised over $40,000. This […]

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Rockin' For Rett

Rockin’ For Rett

I can’t believe that this is our SIXTH year for Rockin’ For Rett! We are so pumped – each year gets bigger and better! I cant thank Joe & Libby and the entire Piggy’s crew enough. Mike Conley is joining us again this year – he of course is always a crowd favorite! The Brent […]

ABA

ABA

Today I spent the morning down at Hopebridge Pediatric Specialists where Boston receives his ABA Therapy along with Speech and OT. I have mixed emotions about ABA. I have seen some amazing changes in him – but at the same time I just hate the idea of him being there altogether. I want to drop […]

Communicating with my girl

Communicating with my girl

First off I want to give a huge thank you to Ingrid who helped me with this great presentation FOUR years ago! Over the years I have had people ask me to share it with them and realized I have never written a blog about it!  I thought I might share it with you here – it […]

Zoo Day!

Zoo Day!

We had a pretty yucky day yesterday at the orthopedic surgeon [Brooklyn will be having surgery over Christmas break to remove the hardware that they used during her hip reconstruction surgery two years ago – due to her growth it has to come out or it will do damage to surrounding bones. She has healed […]

It is almost back to school time!

It is almost back to school time!

It is ALMOST back to school time. Around here that not only means getting Brooklyn ready to return to school but it also means helping her peers get to know and understand her too! Brooklyn will be in the fourth grade this year so most of her classmates have probably been in class with her […]