I remember when we received our diagnosis of Rett Syndrome for Brooklyn. I was devastated to say the least. I had so many fears. How long would she live? What kind of life would she have? Will she miss out on everything all the little girls her age get to do? Will she get to go to school? Will she have friends? The questions played through my mind over and over and over and over…you get the picture.
The truth is with each year comes new information about Rett, more specialists helping us understand our girls. As time passes I still do not know the answers to all of my questions and to be honest I come up with NEW questions. But one thing I am sure of is YES she will absolutely have friends! And YES, she will go to school! Not only will she go to school – she will be included with her peers and learn to read and write, add and subtract – you know….that that typical third grade school stuff! And that school stuff…..well it has changed her life. It has changed her life for the obvious reasons – she is smart and loves to learn and proves to me and everyone else that she IS capable of learning. Yes, it is tough and yes, adaptions need to be made, but she is learning! However, the other perk of this “school stuff” is the peer to peer interaction. You just can’t put a price on that. She is THRIVING this year and I just can’t put into words how much that means to me.
So, OF COURSE I was beyond thrilled to hear about Rett University, which is what happens when you get two amazing women like Susan Norwell and Ingrid Harding in the same room for a weekend! They reached out to talented and dedicated board members, parents, and therapists and Rett University was born! I should take a minute to clarify that I can remember hearing Susan Norwell speak just one year into our diagnosis and it was in that very moment that my thinking had changed. I was encouraged to not put limits on Brooklyn. I remember her saying “believe in your daughter and surround her with people that believe in her” that and “assume competency always.” I am so thankful to her – for her encouragement that day. Now, that encouragement will be available to professionals worldwide that work with all of our girls. Please take a moment to watch this video. (and yes, you just might recognize a certain little cutie in the video)
I got chills and tears streamed down my face the first time I watched it. Heck, I still do. I am so passionate about our girls with Rett Syndrome. They are my inspirations….my heart……my heroes. My hope is that through Rett University more of our girls will be able to reach their full amazing potential, that the teachers, aides, and therapists in their lives will be better equipped to help them, to teach them…..to turn their cant’s into CANS!!
Were you moved by the video? Do you believe in our girls? Are you inspired to help our girls? I want to encourage you to make a donation to help make Rett University possible! Donation levels start at just $10!
Click HERE to help Rett U start changing lives!