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7 years

7 years

Seven years ago today I shared these words on my blog: MONDAY, MAY 21, 2007 Diagnosis Day We got “the call” tonight. Brooklyn’s blood tests were back and she has been officially diagnosed with Rett Syndrome. We have assumed this to be true for a few weeks now but it was still hard to hear […]

Happy Mother's Day

Happy Mother’s Day

It is funny…I am not sure when it happened really. The moment that my mom became one of my best friends. Don’t get me wrong – I don’t ever remember not liking my mom – even during my bratty challenging junior high years :) She has always been there for me. I remember her chaperoning many […]

Integrated Listening

Integrated Listening

Boston does not like wearing headphones…..in fact he pretty much hates headphones which is an issue when the plan is to start incorporating Integrated Listening into his ABA program.  So the plan is to start training him to wear them.  How exactly? The Wiggles of course! The Wiggles go on the ipad the same time the […]

Love & Awareness for DS/ADS

Love & Awareness for DS/ADS

Anyone that knows me, knows my DEEP connection to the Girl Power 2 Cure organization – Rett Syndrome has been in my life for almost seven years now and the GP2C flower logo has become my symbol of hope, belief, and all things Rett Syndrome. However, my second little love also has a diagnosis  (two […]