Last month was Awareness month and when I think about Down Syndrome and Rett Syndrome facts, awareness, and acceptance I could go on and on with stats, stories, symptoms, etc. OR I can post one picture. Denise shared this picture with me yesterday saying it was one of her favorites from the photo shoot. It made me laugh when I first saw it but I also immediately fell in love with it. It is actually pretty symbolic of our life, of us.
Life can be crazy, it can be sad, hectic and frustrating, but it is also very very BEAUTIFUL. It is full of love, the love that I feel when my amazing kids are safe in my arms. It is absolutely full of hope for the future as we enter a new season in life.
Awareness month might be over but not in our house……we are very aware every minute of every hour of every day. Which is why I advocate, fundraise, and post (all the time) about RS and DS-ASD. I want to thank each of you who are a part of our lives encouraging us, praying for us, and supporting us whether that is here physically or virtually. Our lives are blessed because of you!
I am an ordinary mom with two extraordinary kiddos. My daughter Brooklyn is 11 and has Rett Syndrome and is the first special love of my life. My son Boston is 7 and has Down Syndrome and Autism - he also happened to enter this world 10 weeks early, weighing only 2.3 lbs! I often here the words "You have your hands FULL!" I like to remind people that "you should see my heart!" This blog is a little look into my life as a special mommy (x2) I hope you enjoy your time here!