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Prom and an attempt at normalcy

Prom and an attempt at normalcy

I am having a little bit of a freak out that my daughter is turning ten in a month. Double digits. I am not ready for that. Mainly because her birthday also means the anniversary of her Rett Syndrome diagnosis is just around the corner. I can get stuck in that “ugh, this sucks, why […]

Ragnar 4 Rett

Ragnar 4 Rett

This weekend six AMAZING women will we running 182 miles for 182 girls with Rett Syndrome in the ‪#‎SoCalRagnar‬ ‪relay race. They run because our girls can’t and because our hope is that one day they WILL! Brooklyn is mile 177  and her runner is Kristen,  we will be cheering her on from here and hope […]

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Autism Awareness Month

Autism Awareness Month

We are six days into Autism Awareness Month and I have not blogged. (I know – you are not shocked – I have been quite the blog slacker the past few months) Anyway, this is a tough one. I feel like I just “celebrated” World Down Syndrome Day – oh…because we did…just last month! Now…here […]