This weekend six AMAZING women will we running 182 miles for 182 girls with Rett Syndrome in the #SoCalRagnar relay race. They run because our girls can’t and because our hope is that one day they WILL! Brooklyn is mile 177 and her runner is Kristen, we will be cheering her on from here and hope you will join us! Be sure to stop over and “like” the Ragnar4Rett facebook page to keep up on all the fun! PLUS if you want to help us raise some money for research you can make a donation in honor of Brooklyn on her GP2C page: www.gp2c.org/brooklyn
I am an ordinary mom with two extraordinary kiddos. My daughter Brooklyn is 11 and has Rett Syndrome and is the first special love of my life. My son Boston is 7 and has Down Syndrome and Autism - he also happened to enter this world 10 weeks early, weighing only 2.3 lbs! I often here the words "You have your hands FULL!" I like to remind people that "you should see my heart!" This blog is a little look into my life as a special mommy (x2) I hope you enjoy your time here!