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Saying Goodbye

Saying Goodbye

I do not know if this counts as an awareness post really but it is a part of our life – with DS/ASD and ABA Therapy….saying goodbye is HARD! I remember when Boston started ABA – I was terrified. I have to drop my little sweetheart off  – leave him there – all day – […]

Warning: I was MAD at Rett this morning.

Warning: I was MAD at Rett this morning.

I love that there is a month set aside for Awareness of Rett Syndrome but to be honest every single day I am very VERY aware of Rett and what it has taken away from my daughter. From the time she wakes up until the time she closes those beautiful eyes to go to sleep each […]

#Dailylineup

I put the above collage together for Autism Awareness Month but of course with Boston’s Duel Diagnosis I am re-sharing for Down Syndrome Awareness Month too! Also – I created a facebook album of all of his “Daily Line Up” pictures too ! (Click HERE to view them)

Symptoms

Symptoms

Some of you reading this blog know ALL ABOUT Rett Syndrome but some of you might be new here. Maybe you are a Down Syndrome/Autism mom and are stopping by because of my son Boston? Well – since you are here I would LOVE for you to learn a little about my daughter Brooklyn and […]

Down Syndrome (& Autism) Awareness

Down Syndrome (& Autism) Awareness

While it is Down Syndrome Awareness Month I think it is VERY important to educate everyone about having BOTH Down Syndrome and Autism. I knew early on that Boston had other issues going on besides Down Syndrome but to be honest I thought we were just dealing with “preemie” issues. When a kiddo comes 10 […]

#NoMoreEmptyArms

I remember sitting at my dining room table hearing the news that sweet Livvy had passed unexpectedly in her sleep. She was the first little girl that had died since we had received our diagnosis. I never had the chance to meet Livvy and still have not had the opportunity to meet her amazing mamma, […]

Awareness Month Can Start Now!

Awareness Month Can Start Now!

These little cards arrived JUST in time for Rett Syndrome and Down Syndrome awareness month!!! In the past I’ve carried around two individual awareness cards – one for each kiddo. I had purple cards for Brooklyn and separate blue cards for Boston. Now I have ONE card of awesome! Brookies info on one side and […]