2016

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Brooklyn, My first little love. I pray that 2016 is a healthy year for you without surgeries, seizures, broken bones or hospital stays. I hope that it is a year of scientific breakthroughs for Rett Syndrome that will bring us a cure or at least treatments that might help some of the the more devastating symptoms of Rett; because even though you are the strongest, bravest, most patient young lady I know – you shouldn’t have to be. I pray that you continue to have an amazing year in fifth grade and more awesomeness this fall as you move into MIDDLE SCHOOL (*gasp* – I am SO not ready for that!) I remember the mean girls in middle school when I was your age and you do not deserve one second of that because you are the most kind, loving person I know. I pray your amazing friends will always be at your side. Most of all I hope that each day of this year you know how much I love you, believe in you and how much I am inspired by you….you have made me a better mother,  a better woman, and for that I can’t thank you enough.

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Boston, my sweet boy. I pray that 2016 will bring you more functional communication. I want more than anything to know what thoughts are going through that sweet little head of yours and I want to meet your needs in order to reduce the amount of frustration you deal with each day. I hope you continue to love your ABA program, learn new things, and above all that you develop friendships there, because everyone deserves a best buddy and you have so much to offer. I hope that you know that I love you (so much it hurts sometimes) and I hope that every day brings a smile to your face – because that smile changes hearts!

 

Here is to 2016 my friends!

One Response

  1. Stephanie June 10, 2016 at 3:09 pm | | Reply

    Brooklyn and Boston… awesome names! I had to respond to your prayer on seizures.
    I ran across your blog because I have been working with a man with a granddaughter with Rett.   I would like to pass his blog on to you in hopes of blessing your family.

    It is about how epigenetics and technology helped.  I believe that the information will benefit you.

    http://improvedrettlife.blogspot.com

    God Bless

    Have a beautiful weekend.

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