When my sweet girl came into my life eleven years ago. I had no idea what Rett Syndrome was – I had no idea that two years later I would watch this sweet girl lose the words she learned to speak, watch her legs stop working, and her hands refuse to allow her to feed herself. Rett Syndrome is horrible, watching Brooklyn lose so much was horrible, knowing that today girls are being born that in a few short months or years will be faced with the same future is horrible. This is why we fight, we hope, we pray, we support research. So that Brooklyn, all of her Rett Sisters and the girls born today with Rett have a better future. Want to make a donation in honor of Brooklyn, to help fun this much needed research? Use THIS LINK.
I am an ordinary mom with two extraordinary kiddos. My daughter Brooklyn is 11 and has Rett Syndrome and is the first special love of my life. My son Boston is 7 and has Down Syndrome and Autism - he also happened to enter this world 10 weeks early, weighing only 2.3 lbs! I often here the words "You have your hands FULL!" I like to remind people that "you should see my heart!" This blog is a little look into my life as a special mommy (x2) I hope you enjoy your time here!