Down Syndrome

Birthday Boy

Birthday Boy

Happy Happy Birthday to my sweet little guy, Boston. I still can’t fathom that he is SEVEN today. It just can’t be! We won’t be doing much of a party really – he doesn’t care for all of the commotion. But I absolutely CELEBRATE this little life. It is funny, I remember being pregnant with him […]

My Argumentative Kid

My Argumentative Kid

Yesterday Boston was hanging out with my friend Holly (who provides respite hours through the waiver) she is AWESOME with Boston.  First off –  I get this adorable picture from her simply titled “stud muffin” I agree, he is! Its funny because NO WAY would he keep sun glasses on for ANY length of time […]

"Mommy, I want a drink"

“Mommy, I want a drink”

“Mommy, I want a drink” “Mommy, I want a drink” “MOMMY I WANT A DRINK” “Mommy I WANT A DRINK NOW!!!!” I know that MANY of my mommy friends can relate to this very scenario, right? You might be thinking but wait, Boston is NON VERBAL…what the heck is Kelly talking about? No way Boston […]

2016

2016

Brooklyn, My first little love. I pray that 2016 is a healthy year for you without surgeries, seizures, broken bones or hospital stays. I hope that it is a year of scientific breakthroughs for Rett Syndrome that will bring us a cure or at least treatments that might help some of the the more devastating […]

Minor Surgery

Minor Surgery

Today Boston had dental surgery – it was nothing major, it was outpatient, no big deal. Those words are easy to type now that it is over and we are home ;) because leading up to it and during it felt pretty MAJOR! To be honest I did not sleep great last night. The fear […]

Awareness Post: Going to the dentist sucks

Awareness Post: Going to the dentist sucks

I get it NO ONE likes going to the dentist (sorry for any dentist friends I have!) But seriously, does anyone? I hate it. But you know what is worse than going to the dentist myself? Taking MY KIDS to the dentist. I honestly think that taking my poor kiddo (who has Down Syndrome, Autism, and […]

The Struggle

I KNEW when I said I would post EVERY day in October that I would most likely FAIL. I set myself up for failure really. So I apologize and today instead of an awareness post full of facts about Rett Syndrome or Down Syndrome I post this picture. It was taken almost a year ago. […]

Lets share our EXTRAORDINARY kiddos with Social Media!

Lets share our EXTRAORDINARY kiddos with Social Media!

I wanted to share a cool new photo border with all of my DS/ASD friends! It is the perfect way to help share photos and AWARENESS on social media*. Many people do not realize that a child can indeed have BOTH Down Syndrome AND Autism. I figure images like this will spark conversation which will lead […]

Playtex - you are KILLING ME!

Playtex – you are KILLING ME!

Thanks alot Playtex! You discontinued the ONE cup my son can drink independently from! What a nightmare. So of course I go online to try to buy up as many as I can and find posting like this one seen below. YES you are reading that correctly over $200 for two cups – are you kidding […]

Saying Goodbye

Saying Goodbye

I do not know if this counts as an awareness post really but it is a part of our life – with DS/ASD and ABA Therapy….saying goodbye is HARD! I remember when Boston started ABA – I was terrified. I have to drop my little sweetheart off  – leave him there – all day – […]