Down Syndrome

Making Choices

Making Choices

Making choices….we all LOVE to make our own decisions…even at five years old. Now, don’t get me wrong, at five a child can’t be expected to always make good choices – nor do we let them make big, life choices. But how about choosing what dvd they are in the mood to watch or if […]

The daily "line up"

The daily “line up”

The above photos are all examples of  “line ups” that are currently going on in my house this afternoon. I assume most of my Autism mom friends recognize this. I am not sure WHY he does it really. I only know that he does…..all of the time. Mostly with DVDs and blocks but as you can […]

Boston's Blended Diet

Boston’s Blended Diet

It has been awhile since I shared any of my blends. I mixed up a few today so I thought I would post. Keep in mind Boston is gluten and dairy free so if your kiddo is not you can substitute some dairy options as well. I use my Blendtec blender to make them. The […]

Farewell 2014....

Farewell 2014….

I will start this post with an apology…..what a blog slacker…..I thought it might be a good idea to do an end of the year post to touch on some of the highlights (and not so “high”lights of the year. <this is a LONG post – you have been warned!> January – We began the […]

Life.

Life.

Last month was Awareness month and when I think about Down Syndrome and Rett Syndrome facts, awareness, and acceptance I could go on and on with stats, stories, symptoms, etc. OR I can post one picture. Denise shared this picture with me yesterday saying it was one of her favorites from the photo shoot. It […]

ABA

ABA

Today I spent the morning down at Hopebridge Pediatric Specialists where Boston receives his ABA Therapy along with Speech and OT. I have mixed emotions about ABA. I have seen some amazing changes in him – but at the same time I just hate the idea of him being there altogether. I want to drop […]

Integrated Listening

Integrated Listening

Boston does not like wearing headphones…..in fact he pretty much hates headphones which is an issue when the plan is to start incorporating Integrated Listening into his ABA program.  So the plan is to start training him to wear them.  How exactly? The Wiggles of course! The Wiggles go on the ipad the same time the […]

Love & Awareness for DS/ADS

Love & Awareness for DS/ADS

Anyone that knows me, knows my DEEP connection to the Girl Power 2 Cure organization – Rett Syndrome has been in my life for almost seven years now and the GP2C flower logo has become my symbol of hope, belief, and all things Rett Syndrome. However, my second little love also has a diagnosis  (two […]

World Down Syndrome Day

World Down Syndrome Day

First – I am SO sorry for being such a blog slacker. February was filled with the Disney Princess 1/2 Marathon for Girl Power 2 Cure  and then our family vacation to Disney World (which were both AWESOME and WILL be blogged soon I promise) and then Brooklyn ended up in the NICU with double […]

It is ok to sit the bench sometimes.

It is ok to sit the bench sometimes.

This is NOT one of those encouraging posts about being ok with your typical child not being a superstar on the football field or basketball court. It IS an encouraging post about YOU – the special needs parent – the Cheerleader. Your child’s biggest fan and the supporter of all other special needs families. I […]