non-verbal

Birthday Boy 

Birthday Boy 

Tomorrow this sweet boy turns 6, we won’t have a party because too much noise, unwrapping gifts and the chaos that a party can bring is just too stressful for him (heck, the last “birthday party” we had for him ended with us BOTH crying!)   But you can be sure he WILL be celebrated!!! I […]

Gotta start somewhere...

Gotta start somewhere…

  Boston turns six in less than a month and we are no where near being potty trained. This is actually pretty common in the autism community as well as in the Down Syndrome community. As far as kiddos with both I’ve heard mixed reviews: in one of the Facebook groups I am in there are […]

How do I explain?

How do I explain?

I witnessed a tough moment the other day – an interaction between my kiddos…..and it broke my heart. Boston requests a drink or food with PECS (a photo of his cup or bowl.) He either pushes the button under the photo and it speaks the words for him “May I have something to drink please?” […]

So Much to Say

Seven years ago a friend of mine wrote this song for Brooklyn. Today it popped up in my facebook newsfeed for some reason and WOW – talk emotions flooding back! I wanted to share the beautiful words with all of you again today. Verse 1: Silent love, she quiets my soul. All my questions have […]

Prom and an attempt at normalcy

Prom and an attempt at normalcy

I am having a little bit of a freak out that my daughter is turning ten in a month. Double digits. I am not ready for that. Mainly because her birthday also means the anniversary of her Rett Syndrome diagnosis is just around the corner. I can get stuck in that “ugh, this sucks, why […]

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Making Choices

Making Choices

Making choices….we all LOVE to make our own decisions…even at five years old. Now, don’t get me wrong, at five a child can’t be expected to always make good choices – nor do we let them make big, life choices. But how about choosing what dvd they are in the mood to watch or if […]

ABA

ABA

Today I spent the morning down at Hopebridge Pediatric Specialists where Boston receives his ABA Therapy along with Speech and OT. I have mixed emotions about ABA. I have seen some amazing changes in him – but at the same time I just hate the idea of him being there altogether. I want to drop […]

Communicating with my girl

Communicating with my girl

First off I want to give a huge thank you to Ingrid who helped me with this great presentation FOUR years ago! Over the years I have had people ask me to share it with them and realized I have never written a blog about it!  I thought I might share it with you here – it […]

It is almost back to school time!

It is almost back to school time!

It is ALMOST back to school time. Around here that not only means getting Brooklyn ready to return to school but it also means helping her peers get to know and understand her too! Brooklyn will be in the fourth grade this year so most of her classmates have probably been in class with her […]