Double Digits
Today my beautiful daughter Brooklyn turns ten years old. Ten 1,2,3,4,5,6,7,8,9….10 DOUBLE DIGITS – what?!?! Where did the past 9 years go? It feels like just yesterday that she was wrapped up in my arms looking up at me for the very first time. Now, she sits here in front of me – a pre-teen, a […]
Ragnar 4 Rett
This weekend six AMAZING women will we running 182 miles for 182 girls with Rett Syndrome in the #SoCalRagnar relay race. They run because our girls can’t and because our hope is that one day they WILL! Brooklyn is mile 177 and her runner is Kristen, we will be cheering her on from here and hope […]
Team Brooklyn – Disney Princess 1/2 Marathon
I am taking 2015 off from running the Disney Princess 1/2 Marathon. I will be there to CHEER on all of the runners and will be helping out with all of the GP2C events and hanging out with my Rett Syndrome family – just no running this year. Of course that does not mean that […]
Rockin’ for Rett
This year’s Rockin For Rett was AMAZING!!! I still can’t believe that this was our SIXTH year. Where has the time gone? I am still SO thankful that Libby came to me wanting to host an event, wanting to do SOMETHING to help. Over the past six years this event has raised over $40,000. This […]
Rockin’ For Rett
I can’t believe that this is our SIXTH year for Rockin’ For Rett! We are so pumped – each year gets bigger and better! I cant thank Joe & Libby and the entire Piggy’s crew enough. Mike Conley is joining us again this year – he of course is always a crowd favorite! The Brent […]
It is almost back to school time!
It is ALMOST back to school time. Around here that not only means getting Brooklyn ready to return to school but it also means helping her peers get to know and understand her too! Brooklyn will be in the fourth grade this year so most of her classmates have probably been in class with her […]
Depending on others is NO fun
Yep. I have been a blog slacker. Today though something has been going through my mind so much that I felt the need to blog about it….. Some of you may know that I had to have abdominal surgery. It all went well, and everything is fine….I am just finishing up “recovery time” which my surgeon […]
7 years
Seven years ago today I shared these words on my blog: MONDAY, MAY 21, 2007 Diagnosis Day We got “the call” tonight. Brooklyn’s blood tests were back and she has been officially diagnosed with Rett Syndrome. We have assumed this to be true for a few weeks now but it was still hard to hear […]
HOW did Brooklyn “ROCK” her quizzes???
Yesterday I shared this picture of Brooklyn after school on facebook, saying she ROCKED two quizzes. I had a couple comments and emails asking about how she took them so I thought I would do a blog post to help explain it a bit more. (Thank you Beth – emailing you encouraged me to share!) […]
Coloring eggs was a bit more fun this year ;)
It is that time of year – to get out all of the egg decorating kits. This year we thought it would be a little more fun for Brooklyn to have a few friends over to decorate eggs (I think we were right!) Thank goodness my mom hits the clearance bins each year – we […]
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