I got to hang out with Josh last night and share his ice cream cake! It was so much fun….I love Josh! I hope you had a GREAT birthday!!!!
So peaceful…no clapping, irregular breathing, tremors, nothing. What a blessing for her.
I had someone ask me about Brooklyn’s seizures today. I realize it has been awhile since I updated everyone about them. We are currently at 2 cc’s of Keppra twice daily and she is doing GREAT! No seizures in quite awhile! YEAH!! Also, she is doing FABULOUS on the Miralax. I was given a bottle [...]
Thursday meant Nan came to my house to play with me (Physical Therapy.)Playing on my ball is one of my favorite times. We bounce and roll and stretch, I love it!Nan keeps my spine stretched out too, Rett girls have some trouble with scoliosis sometimes, we work on doing our best to offset that. Of [...]
I am not sure if you can tell from the picture but this rainbow ended right in the middle of Landis road last night. Ummmm….no gold, not even any lucky charms, just my road. It was however, a GREAT way to end the day though! BEAUTIFUL! Ok….Scott Meyers (here at TSU) told me that I [...]
I am not sure if anyone on Team Butler is interested in hanging up the “official” Strollathon poster or not but click here if you are! Next year Brooklyn will be on the poster! My new friend Jennifer and her daughter Hannah are the ones on the far right side (in the blue shirt!) She [...]
I did SO well in therapy tonight! Maybe that is why I got to go to Dairy Queen after dinner tonight! I split a twist cone with my mommy! I did get some in my mouth even though in this picture it looks like it ended up all on my face.
Well….my mosquito bites are looking better and I slept ALL NIGHT LONG last night and mommy dressed me in head to toe pink today(my favorite!) ~ it does not get much better than this! I am off to a great start today. (Shannon do you recognize this shirt…..thanks Smith girls for my cool princess tank [...]
Team Butler Strollathon Members: Almost all strollathon information packets are in the mail! YEAH! If you have any questions please let me know. We are all SO excited about the strollathon here in the Butler house. Please remember to make your hotel reservations at the Holiday Inn Riverfront in Cincinnati if you have not done [...]