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My favorite thing…

Published by on July 11, 2007 | Leave a response

This is my first attempt at a video post (THANKS STEVE!!)

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Good Night Sleep Tight

Published by on July 11, 2007 | 1 Response

I need to brag……it has been over a week of sleeping through the night! Yeah for me.

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Daddy/daughter pictures (then & now)

Published by on July 11, 2007 | 1 Response

I was organizing some photos and came across one of my favorite pictures of Charlie and Brooklyn when she was only a few weeks old……look at the two loves of my life now. They have looked alike from the moment she was born! I have to admit they both look better with their current hair [...]

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(Untitled)

Published by on July 10, 2007 | Leave a response

I love to swing, it finally cooled down a little after dinner so I could go outside and swing.

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Mommy’s New Room

Published by on July 9, 2007 | 1 Response

I look so tiny on mommy and daddy’s King size bed.My daddy could be on Trading Spaces!! He repainted AND put a new floor in for mommy this weekend. It looks so good! They still need to install the TV (for my morning Wiggles) and hang some pictures but check out dad’s good work! Matt [...]

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T-Shirt

Published by on July 6, 2007 | Leave a response

I have been on a couple different T-Shirt sites lately. We are looking into designing and ordering some “Team Butler” shirts for everyone headed to Cincinnati in September to walk for Brooklyn in the Rett Syndrome Strollathon. This has nothing to do with those T-shirts but anyway, here is one I stumbled across today: I [...]

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Rett Update

Published by on July 5, 2007 | 1 Response

The 2cc’s of Keppra seem to be working (at least for now.) She has adjusted very well to the increased dosage. We are all keeping a close watch but for now….no seizures! (YEAH!!!) Her teeth grinding has increased tremendously over the past week or so, from the research I have done it does not seem [...]

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I finally met Sam!

Published by on July 3, 2007 | 1 Response

Matt, Sam, and Niki came up from Louisville to see me!Sam and I hit it off right from the start!Sam gave me lots of hugs yesterday, his mommy said I was special because he does not give out hugs! I know it looks like he is choking me….he is not…he was so sweet. I think [...]

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THANKS Grammy!!

Published by on July 1, 2007 | 2 Responses

Thanks for watching me while dad and mom had their get away anniversary weekend. I had so much fun with you! Of course I always like it when you come play with me! I think I might tell mom and dad to go away more often…what do you think?

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WE GOT OUR APPOINTMENT!!!!

Published by on June 30, 2007 | 1 Response

The Blue Bird Circle Rett Center (at Baylor College of Medicine) in Houston, Texas is involved in three major activities: Caring, Education, & Research. The Rett Center at BCM is one of the few centers in the United States that specializes in the diagnosis and care of girls and women with Rett Syndrome. They provide [...]

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