I have been reading quite a few Down Syndrome blogs lately….Tomorrow is World Down Syndrome Day. It is celebrated on 3.21 each year. The date is significant as it represents 3 copies of the 21st chromosome: the genetic condition known as “trisomy 21,” or “Down syndrome.” Over the past couple of weeks, I have read [...]
World Down Syndrome Day is celebrated on 3-21 of each year. 3-21 represents three copies of the twenty-first chromosome that all individuals with Down syndrome have. I like to call it a little bit of something extra awesome! A fellow Down Syndrome mamma has a friend that is creating these personalized cover photos as a [...]
(photo credit: Global Hydranencephaly Foundation) I have heard everyone of the things listed in the box and I love the addition to the photo – “I think you meant to say these things to my child” or in my case children. Yep. My kids are brave, strong, inspiring, and my little heroes!
And so it begins…… Boston is three and non-verbal. Which is not uncommon for a kiddo with Down Syndrome. It is however frustrating – for him and for me. This of course is my second time around with beginning the communication process with a non- verbal kiddo. Brookie ROCKED it and seemed to get the [...]
“that tv show is so retarded” “you missed our turn. what are you? a retard?” Most of us hear phrases like these everyday. Heck – some of you reading this USE phrases like this. I truly believe that MOST people who use “the r word” do not intend to be hurtful or disrespectful in any [...]
It truly is hard to even put into words the emotions of last weekend….but before I start getting hate mail for not blogging about the weekend…here it goes….. My partner in crime for the weekend – Ingrid Harding. We do not get to see each other much throughout the year but you can bet we [...]
It is Feeding Tube Awareness Week. I do not post much about Brooklyn’s feeding tube anymore but this week it seemed like a good idea! It has been one year, six months, and 29 days since Brooklyn had her feeding tube placed. (Yes, I realize it sounds little nuts that I know it down to [...]
We need a way for her friends to “practice” using Brooklyn’s eye gaze board to communicate with Brooklyn – but it was taking a long time for them to all take turns with the one she uses during class SO….what do we do….we adapt. We found these clear clip boards at Staples. We taped index [...]