WARNING: Awareness is about to happen!

It is ALMOST October. Which means it is ALMOST Down Syndrome Awareness Month AND Rett Syndrome Awareness Month!!! I plan on blogging EVERY SINGLE DAY. You will hear great facts and stories, you will get updates on research and of course see super cute pictures of my kids like this:   It is my month […]

Fall, Fun, & Friendship

Fall, Fun, & Friendship

School has been in session for over a month now an I am finally getting it together enough to start having friends over after school! I promised Brooklyn I would be better at getting friends together outside of school this year. She was PUMPED to have her friend Audrey over. When asked her opinion on […]

Inclusion ROCKS: Friends ROCK!

Inclusion ROCKS: Friends ROCK!

I can’t believe that Brooklyn has been in school three weeks and I have not done a single blog post about 5th grade yet. SHE IS LOVING IT!!! So far my favorite story was last week. When I picked her up her afternoon 1:1 aide shared a story with me. She said that two of […]

Birthday SUCCESS

Birthday SUCCESS

Boston had a great birthday! We decided on no real “party” just family. This year no one wrapped their gifts (he HATES to unwrap – too much sensory stuff) – My nephew (in the picture) hung out in the hot tub while we set out his gifts (a trampoline, a tent, wiggles movies and helium balloons […]

6 years of Boston AWESOMENESS!!

6 years of Boston AWESOMENESS!!

Birthday Boy 

Birthday Boy 

Tomorrow this sweet boy turns 6, we won’t have a party because too much noise, unwrapping gifts and the chaos that a party can bring is just too stressful for him (heck, the last “birthday party” we had for him ended with us BOTH crying!)   But you can be sure he WILL be celebrated!!! I […]

Best Shoes EVER

Best Shoes EVER

Have you ever had a pair of shoes that made you cry? ME either……until this week. When Brooklyn received THESE amazing personalized JUST FOR HER converse shoes in the mail! As you can tell by the look on her face she LOVES LOVES LOVES them! (all of her friends thought they were pretty FABULOUS too!) […]

Gotta start somewhere...

Gotta start somewhere…

  Boston turns six in less than a month and we are no where near being potty trained. This is actually pretty common in the autism community as well as in the Down Syndrome community. As far as kiddos with both I’ve heard mixed reviews: in one of the Facebook groups I am in there are […]

Fifth Grade - Presentation to Brooklyn's Class

Fifth Grade – Presentation to Brooklyn’s Class

Today I went in to Brooklyn’s fifth grade class to do a brief presentation on Rett Syndrome and how to communicate with Brooklyn. I try to do this each year at the beginning of the year so that her classmates and new teacher have a better understanding of Brooklyn. This year there were only three […]

How do I explain?

How do I explain?

I witnessed a tough moment the other day – an interaction between my kiddos…..and it broke my heart. Boston requests a drink or food with PECS (a photo of his cup or bowl.) He either pushes the button under the photo and it speaks the words for him “May I have something to drink please?” […]