Rett Update

The Keppra that they have prescribed for her seizures seems to be helping a bit but she is SO sleepy that it has been hard to tell how effective it is really. Sometimes I feel that she is so tired that I can’t tell if she is having a seizure for sure. I have talked to other mom’s (thanks again Jennifer) and this is the normal reaction at first. We will keep an eye on her but so far I believe Brooklyn is on her way to being seizure free!!!

3 Responses

  1. Doris June 11, 2007 at 4:35 pm | | Reply

    Hi this is Doris! Mom of Edda (3 – RS). Good to find you! I love the internet to bring us all together. Good luck with the medication, I’m crossing my fingers for you.

  2. Rebecca June 11, 2007 at 8:28 pm | | Reply

    Hello. I’m Rebecca, my daughter Caitlyn with be 4 in August, and she also has Rett Syndrome. Brooklyn is beautiful! I hope the Keppra works for you. Caitlyn is on Zonegran, and we have been very lucky with that one! Great to find you!

  3. Samson James June 11, 2007 at 10:39 pm | | Reply

    We are keeping our fingers crossed!!!!

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