Girl Power 2 Cure has launched an amazing new site that I want to share with all of my Rett Syndrome families. It is called rettgirl.org and like the logo says…..it is “The Everything Rett Site.” You can check out all sorts of Rett Syndrome products, doctors, fundraisers, recipes, websites and more! The best part is YOU can add YOUR ideas. We are all in this crazy Rett life together…but together we will make a difference! I hope you take a minute to check out the site and I hope you love it!! Don’t forget while you are there to register for our newsletter!
I am an ordinary mom with two extraordinary kiddos. My daughter Brooklyn is 11 and has Rett Syndrome and is the first special love of my life. My son Boston is 7 and has Down Syndrome and Autism - he also happened to enter this world 10 weeks early, weighing only 2.3 lbs! I often here the words "You have your hands FULL!" I like to remind people that "you should see my heart!" This blog is a little look into my life as a special mommy (x2) I hope you enjoy your time here!