Boston had is follow up with his heart specialist yesterday. Overall, it was a really encouraging visit. The echo showed no signs of pulmonary hypertension so that means the medicine is working. The goal now is to cut back on the meds and see if there are still no signs of the hypertension, as of last night his meds were reduced by half. He also reduced his oxygen from 1/8 of a liter to 1/16. We tried 1/32 but he did not do so well on that. I was happy that we were able to reduce it though! We have our next appointment in three months. So, unfortunately we are on oxygen for at least three more months. He did have a good weight gain though – he is 6 pounds 10 ounces now….wow has my little guy come a long way in three months – 2.3 pounds seems forever ago. I have to laugh when people comment on how little he is….if only they saw his tiny beginning!

4 Responses

  1. The Leckrones December 22, 2009 at 11:57 am | | Reply

    YAH Boston!!!! SO glad your appointment went well!!!! We hope you have a very merry first Christmas!!!! And we can't wait for you to be off all of your medicine!!!! Love you guys!

  2. Erica December 22, 2009 at 3:32 pm | | Reply

    he is a champion!!

  3. Dominique December 23, 2009 at 1:53 am | | Reply

    what a big boy he's growing to be! i'm glad your appt went well. merry christmas to the butler crew!

  4. Anonymous December 23, 2009 at 4:29 pm | | Reply

    PRAISE GOD! My heart rehoices with all of you! I have tears in my eyes. Pulmonary hypertension is a word I hate. Have had Owen tested for it and it scared me to death.


    Hugs and love,
    Kelly and boys


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