Chutes and Ladders
Thank you Ceelie and Sage for the Dora Chutes and Ladders game! We all had a blast playing it together last night. Brooklyn won! She was Dora….her favorite! All smiles seeing HER piece hit the finish line FIRST!!
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Lately I have be receiving a little special gift from Brooklyn….she likes to hold my hand when we are cuddling. These times are so special to me – because of Rett Syndrome her hands are usually “clapping” continuously or clinched so tightly that is is hard to open them. I cherish her hand holding!I also […]
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Our prayers were heard and answered!! Boston’s Cystic Fibrosis test results came back NORMAL!!! That was the best news ever for me. We also heard good results at the eye doctor – no signs of Retinopathy either. His eyes look healthy and we do not have to return to the specialist. He wants us to […]
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We had Boston’s sweat chloride testing today. It was a nightmare. First we get there and they told us that we were supposed to be there yesterday – which is funny since I confirmed with the doctors office about all the details for today (UGH!) Our 11:30 test started at 1:30. Boston cried and screamed […]
Giggles from Brooklyn’s room
Brooklyn LOVES her daddy. They were playing in her room after bath tonight….thought I would take some pictures of the two of them. Looks like she needs one her own size! In case you were wondering – Brooklyn WON the game of Candy Land! Daddy stealing kisses…..
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Boston is not loving the hat that his big sister picked out for him….but boy does he look cute in it!
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Boston had his appointment with the lung yesterday – we are staying on the oxygen for awhile….his stats dropped when they took his oxygen off of him. I suppose that is not surprising to me really, we expected to be on the oxygen for awhile. They are also switching him from Zantac to prevacid for […]
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I joked about not being able to get my Christmas cards out until New Years (or later) but then thought maybe sending my Christmas wishes via the blog and facebook might be ok this year with everything going on in the Butler house!We want to thank all of our friends and family for your love […]
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I joked about not being able to get my Christmas cards out until New Years (or later) but then thought maybe sending my Christmas wishes via the blog and facebook might be ok this year with everything going on in the Butler house!We want to thank all of our friends and family for your love […]
Mommy’s Little Man
Another cute shirt from Aunt Kristin :) Snuggling with Grammy…. Does it get any more adorable than this?!?!
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